Palliative care in amyotrophic lateral sclerosis (motor neurone disease)

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Bibliographic Information

Palliative care in amyotrophic lateral sclerosis (motor neurone disease)

edited by David Oliver, Gian Domenico Borasio, and Declan Walsh

Oxford University Press, 2000

Available at  / 6 libraries

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Note

Includes bibliographical references and index

Description and Table of Contents

Description

Although new treatments for amyotrophic lateral sclerosis / motor neurone disease are being developed, these at present offer only the potential to slow the disease process. Therefore a palliative care approach to the care of the patient and their family is at the centre of good clinical practice in ALS/MND. This book provides an evidence-based guide to care, including the control of symptoms, the psychosocial care of patients and their families and care in bereavement. The contributors are from many different disciplines and are all closely involved in the care of ALS/MND patients, giving a depth of practical knowledge and experience and allowing a comparison of the differences across cultures, social circumstances, health care systems and nations. The book aims to provide a reference for all involved in the care of patients with ALS/MND, including neurologists, general physicians, rehabilitationists, paramedical staff, general/family practitioners and specialist palliative care teams.

Table of Contents

  • 1. Motor neurone disease/amyotrophic lateral sclerosis - clinical neurology and neurobiology
  • 2. Palliative care
  • 3. Breaking the news (appendix - advance directives)
  • 4. The control of symptoms - Dyspnoea
  • 5. The control of symptoms - Dysphagia
  • 6. The control of symptoms - Other symptoms
  • 7. Psychosocial care
  • 8. Multidisciplinary care - Physiotherapy
  • 9. Multidisciplinary care - Occupational Therapy
  • 10. Multidisciplinary care - Speech and Language Therapy
  • 11. Multidisciplinary care - Clinical Psychology
  • 12. Multidisciplinary care - Rehabilitation Medicine
  • 13. Models of care - MND Association of England, Wales and Northern Ireland
  • 14. Models of care - ALS Association (USA)
  • 15. Models of care - South Africa
  • 16. Models of care - Japan
  • 17. Models of care - Netherlands
  • 18. End of life care
  • 19. Bereavement
  • 20. Personal experiences - A carer's view
  • 21. Personal experiences - A patient view
  • 22. The future
  • Appendix 1 - list of suppliers of equipment
  • Appendix 2 - list of internet sites

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