肢体不自由児家族の情報提供の現状とその課題  [in Japanese] The Current Situation and Issues Concerning the Provision of Information by Families with Physically Disabled Children  [in Japanese]

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Abstract

〔目的〕肢体不自由児の家族が情報提供している現状とその課題を明らかにするため調査をした.また,家族からの情報提供を具体的に支援する方法を検討した.〔対象〕T市肢体不自由児父母会に所属し特別支援学校や特別支援学級に通学の小学生中学生の家族28名である.〔方法〕家族が情報をどこに提供しているか,またその提供方法と内容を質問紙調査した.〔結果〕家族は全員,学校に情報提供し,学校以外に障害福祉サービス事業者や保健福祉事務所の保健師,行政の担当者等に23名(82.1%)が提供していた.この情報は受診医療機関や治療歴と家庭生活の介助方法であった.家族は提供時に負担を感じ,正しく伝えられているか不安を感じていた.これらの情報を家族が記録し保持することについて20名が必要と回答した.11名(39.3%)が情報を記録するものがほしいと回答した.〔結語〕今後,肢体不自由児家族の情報提供を支援するツールとして,情報を記録し保持する手帳など具体的に検討する必要がある.<br>

[Purpose] We conducted a survey to clarify issues and the current situation regarding the provision of information by families with physically disabled children. [Subjects] The subjects were the parents of 28 elementary and junior high school students attending special educational facilities who were members of a physically disabled parents’ association connected with the facilities. [Method] We conducted a questionnaire survey asking to whom families provided information and the methods and contents of the information. [Results] All families provided information to schools, and 23 persons (82.1%) also provided information to disabled welfare service workers, public health and welfare nurses, or local government officals. This information was for assistance with family life, medical history or medical consultation facilities. Families felt a burden at the time of providing the information, and were worried about whether they were communicating the information correctly. When asked whether families were recording and keeping this information, 20 persons replied that it was necessary, and 11 persons (39.3%) answered that they wanted something to record the information in. [Conclusion] In the future, it will be necessary to examine the detailed needs of a notebook for recording and keeping information as a support tool for the provision of information by families of physically disabled children.<br>

Journal

  • Rigakuryoho Kagaku

    Rigakuryoho Kagaku 26(4), 493-498, 2011-08-20

    The Society of Physical Therapy Science

References:  11

Codes

  • NII Article ID (NAID)
    10029619078
  • NII NACSIS-CAT ID (NCID)
    AN10472896
  • Text Lang
    JPN
  • Article Type
    ART
  • ISSN
    13411667
  • NDL Article ID
    11222978
  • NDL Source Classification
    ZF21(教育--体育)
  • NDL Call No.
    Z7-1893
  • Data Source
    CJP  NDL  J-STAGE 
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