Practical Approach for Collection Study of Human Biomaterials on Intractable Skin Diseases
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- MUTO Masahiko
- Department of Dermatology(Dermatology),Yamaguchi University Graduate School of Medicine
Bibliographic Information
- Other Title
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- ヒト生体試料を利用した医学研究への実践的対応
- ヒト セイタイ シリョウ オ リヨウシタ イガク ケンキュウ エノ ジッセンテキ タイオウ
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Abstract
Our research project was to collect human biomaterials, as a part of the Research on Measures for Intractable Diseases of the Ministry of Health, Labour and Welfare, Japan, including human blood and skin tissue from the patients who are affected in 7 different intractable skin diseases. The seven diseases consisted of pemphigus, epidermolysis bullosa, congenital ichthyosiform erythroderma, generalized pustular psoriasis, neurofibromatosis(I・II),xeroderma pigmentosum, and tuberous sclerosis(Bourneville-Pringle diseases).We are trying to develop bio bank for a continuous medical research for the intractable skin diseases. In order to carry out the study plan, we have the two major problems;first, who has the property for the corresponding human bio materials? Second, who has an official right based on patent law? To resolve the above problems, between patients including their family members and doctors, there should be fiducial qualities on thinking informed consent, based on freedom of choice from the patient side and fairness. Moreover some practical laws including material transfer agreement should be present in Japan.
Journal
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- Yamaguchi Medical Journal
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Yamaguchi Medical Journal 62 (4), 199-204, 2013
Yamaguchi University Medical Association
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Details 詳細情報について
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- CRID
- 1390001204834612736
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- NII Article ID
- 10031196855
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- NII Book ID
- AN00243156
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- ISSN
- 18804462
- 05131731
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- NDL BIB ID
- 024985279
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- Text Lang
- ja
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- Data Source
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- JaLC
- IRDB
- NDL
- Crossref
- CiNii Articles
- KAKEN
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- Abstract License Flag
- Disallowed