インターネットのセカンドオピニオン請求の質問にみる肺癌患者および家族の訴え

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  • Requests for Second Opinions Through the Internet Reveal the Feelings and Concerns of Patients With Lung Cancer and Their Families.

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Objective. To gain insight into the feelings and concerns of patients with lung cancer and their families. Method. We announced on our Department of Thoracic Surgery website (http://www.jikei.ac.jp) and a lung cancer treatment website (http://www.akiba.gr.jp/tcp/) that we would accept requests for second opinions from patients and their families. We analyzed comments and questions received from May 1998 through February 2001. Results. We received 430 messages by e-mail, telephone, or facsimile concerning 386 patients. Messages concerning 87% of these patients were sent by e-mail. Of the 386 patients, 79% had lung cancer and additional 8% were suspected of having lung cancer. The male-to-female ratio of patients was 1.9: 1. The patients' ages ranged from 16 to 90 years and the average age was 61.7 years. Eighty-two% of patients were aged 50 to 79 years. Of the persons sending messages, 60% were children of patients. The male-to-female ratio of message-senders was 0.94: 1. A majority of questions (59%) concerned future plans for medical treatments or standard medical treatments, and 18% of questions concerned nonstandard medical treatment plans. The messages included 67 complaints, which included requests for information about other hospitals. Questioners often expressed dissatisfaction with incomplete explanations from physicians and the long waiting times for hospitalization or operation. Conclusion. Patients and their families are most often concerned about medical treatment plans. They are often not satisfied with the treatment of malignant tumors, such as lung cancer. Although the communication between a patient or patient's family and a doctor is relatively good, communication needs to be improved, especially between physicians and patient's children. Patients and their families are often dissatisfied with the explanations or treatment plans of their general practitioner and want to hear the opinion of a specialist.

収録刊行物

  • 肺癌

    肺癌 42 (6), 589-593, 2002

    特定非営利活動法人 日本肺癌学会

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