筋萎縮性側索硬化症(ALS)患者の役割認識の変化 : 非連続性から連続性へのプロセスを通して  [in Japanese] Change in Perception of Role among Amyotrophic Lateral Sclerosis (ALS) Patients : From Discontinuity to Continuity  [in Japanese]

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Abstract

本研究の目的はALS患者の役割認識の変化とアイデンティティの崩壊と再構築のプロセスを明らかにすることである.2010年に12名のALS患者に聞き取り調査を実施した.分析にはグラウンデッドセオリーを使用した.分析では非連続性と連続性をキーワードとした.病状の進行により<ネガティブな非連続性><役割の喪失>が生じ,アイデンティティが崩壊し,<存在価値への疑問>を抱いた.しかし,<自分にできることの模索><見失いかけた自分の模索>を行うとともに,<存在の意味の模索>を始めた.<自分らしさの連続性>に気づくことで,アイデンティティが再構築された.また,<役割の喪失>も<役立つことの模索><存在の意味の模索>を行うことで,<役割の継続><新しい役割>につながり,アイデンティティ再構築が促進された.<新しい役割>への移行に際し連続性をベースとしていたことから,<新しい役割>も連続性の一つであると考えられる.

The aims of the present study were to elucidate the change in perception of role among ALS patients and to elucidate the processes of change in perception of role and of destruction and rebuilding of identity. Interviews were conducted with twelve ALS patients in 2010. The analysis was carried out using grounded theory. The keywords of the analysis were discontinuity and continuity. With the progression of the disease, patients experienced negative discontinuity and loss of role, resulting in destruction of identity and a raise in doubt as to whether there was a value in living. Nevertheless, they began to search for 'something they could do' and to search for the self. They had begun to lose sight of, while at the same time starting the search for the value in living. Becoming aware of the continuity of their individuality allowed them to rebuild their identity. Regarding the loss of role, meanwhile, the search for a way of contributing and the search for the value in living led the patients to role continuation and new roles, which promoted the rebuilding of identity. As continuity was taken as the basis in the transition to a new role, the new role could be seen as another aspect of continuity.

Journal

  • Japanese Journal of Social Welfare

    Japanese Journal of Social Welfare 55(3), 41-52, 2014

    Japanese Society for the Study of Social Welfare (JSSSW)

Codes

  • NII Article ID (NAID)
    110009900518
  • NII NACSIS-CAT ID (NCID)
    AN00314800
  • Text Lang
    JPN
  • ISSN
    0911-0232
  • NDL Article ID
    026005713
  • NDL Call No.
    Z6-275
  • Data Source
    NDL  NII-ELS  J-STAGE 
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