神経難病医療ネットワークにおける難病医療専門員のコーディネート機能  [in Japanese] Activities and Functions of the Nurse Coordinator in the Network for Intractable Neurological Diseases.  [in Japanese]

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Abstract

【背景と目的】1999年開始の群馬県神経難病医療ネットワーク推進事業において, 本事業拠点病院の群馬大学医学部附属病院神経内科外来に配置された神経難病医療専門員 (看護師) の活動を分析し, 難病医療専門員の調整機能を類型化することを目的とする.【対象と方法】2年間の活動記録類を資料とし, 事例毎に内容をコード化し, 類似性を基に集計, 整理・分類した.【結果と結論】神経難病医療専門員は療養者・家族, 保健師, 医師等から, 療養者244人について601件の相談があり支援していた.その調整機能は, 療養相談・指導, 療養者の受入施設確保調整, 拠点病院受診者フォローアップ, 保健所における難病療養者フォローアップの支援, 地域ケア力向上のための調査・研究・研修, に類型化された.拠点病院神経内科外来に配置された難病医療専門員の活動は, 神経難病医療ネットワークが難病療養者のニーズに対応するシステムとして, 有効に機能していくことを強化している.

Background : For patients with severe intractable neurological diseases such as amyotrophic lateral sclerosis (ALS) to be hospitalized when their conditions become worse, the Gunma prefectural government established a network of 65 hospitals in 1999. A nurse coordinator has been assigned to the Department of Neurology at the Gunma University Hospital, the center hospital for the network.<BR>Objectives and Methods : We analyzed records the coordinator kept from 1999 to 2001 and classified coordinating activities in this network.<BR>Results and Conclusions : The coordinator responded to 601 consultations on 246 patients given by patients, their families, public health nurses., and doctors. Coordinating activities were classified into5 categories : giving specialized and specific advice at each consultation, coordinating patient, hospitalization following up patients at the center hospital and coordinate local services, supporting patients followed by public health centers and enlarging local care capacity through activities such as studies and seminars. We found that the coordinator at the center hospital has been functioning very well in this network. Coordinators such as those in this network are indispensable for sound care systems for intractable neurological diseases.

Journal

  • The Kitakanto Medical Journal

    The Kitakanto Medical Journal 52(4), 243-252, 2002

    The Kitakanto Medical Society

Codes

  • NII Article ID (NAID)
    130000874599
  • NII NACSIS-CAT ID (NCID)
    AN10585677
  • Text Lang
    JPN
  • ISSN
    1343-2826
  • NDL Article ID
    026777778
  • NDL Call No.
    Z19-138
  • Data Source
    NDL  J-STAGE 
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