ヒトゲノム研究の規制について:ゲノム情報の利用に焦点をあてて  [in Japanese] On the regulation of human genome research-the use of genome information  [in Japanese]

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Author(s)

    • 増井 徹 Masui Tohru
    • (独)医薬基盤研究所難病・疾患資源研究部 Department of Research on Disease Bioresources National Institute of Biomedical Innovation

Abstract

The ethical guidelines on human genome research was revised in 2013 and we are now on a new stage in the regulation. Because of innovative scientific and technological developments, the number of new issues to be discussed is increasing even after the establishment of the revised guidelines. At least we need broad temporary agreements on the yet unsolved issues. As I mentioned in this article, the most important thing is the establishment of platforms to discuss the arising problems on rapid progress of genome research from diversified standpoints such as technical advancement, social atmosphere, and trends on the use of human genome information in research and medical practices.In this article, I covered the issues on whole genome analysis of HeLa cells and discussed what and how the 'consent' should be, especially focusing on broad consent. These problems remain to be a central issue in the use of human materials and information in science research.

Journal

  • Organ Biology

    Organ Biology 21(1), 16-23, 2014

    The Japan Society for Organ Preservation and Biology

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