What are patients with Rett syndrome interested in?

• Hirano Daisuke

  Graduate School of Health and Welfare Sciences, International University of Health and Welfare: 2600-1 Kitakanemaru, Ohtawara, Tochigi 324-8501, Japan Department of Occupational Therapy, School of Health Sciences at Narita, International University of Health and Welfare, Japan

• Taniguchi Takamichi

  Graduate School of Health and Welfare Sciences, International University of Health and Welfare: 2600-1 Kitakanemaru, Ohtawara, Tochigi 324-8501, Japan Department of Occupational Therapy, School of Health Sciences at Ohtawara, InternationalUniversity of Health and Welfare, Japan

Abstract

[Purpose] Rett syndrome is a severe neurodevelopmental disease; individuals typically have no verbal skills or purposeful hand movements. In clinical settings, knowledge of their interests would be helpful for therapy. Therefore, we investigated the interests of Rett syndrome patients. [Subjects and Methods] In 2016, we sent a questionnaire regarding the interests of individuals with Rett syndrome to 1,016 directors of schools for special needs education and 204 directors of rehabilitation departments (130 facilities for persons with severe motor and intellectual disabilities, 73 wards for patients with severe motor and intellectual disabilities, and the National Hospital Organization and National Center Hospital, and the National Center of Neurology and Psychiatry) in Japan. We used descriptive statistics and content analysis to examine the answers to the questionnaires. [Results] Information was acquired from 216 individuals (3–53 years old) with Rett syndrome. 92.9% of the individuals were reported to have some interests (e.g., in people, music, things to see, animation, or books). [Conclusion] Individuals with Rett syndrome were observed to be interested in various things despite their having severe motor and intellectual disabilities. These findings suggest that family members and care staff might facilitate various changes or developments of these individuals and discover their hidden strengths by focusing on their interests.

Journal

• Journal of Physical Therapy Science

  Journal of Physical Therapy Science 30 (2), 258-261, 2018

  The Society of Physical Therapy Science

Keywords

• Rett syndrome
• Severe motor and intellectual disabilities

Details

• CRID: 1390282679308850176
• NII Article ID: 130006394157
• DOI: 10.1589/jpts.30.258
• ISSN: 21875626
• ISSN: 09155287
• Web Site: https://www.jstage.jst.go.jp/article/jpts/30/2/30_jpts-2017-530/_pdf
• Web Site: https://search.jamas.or.jp/link/ui/2019100375
• Text Lang: en
• Data Source:
  • JaLC
  • Crossref
  • CiNii Articles
  • KAKEN
• Abstract License Flag: Disallowed