Caregiving Experiences of Spouses Who Provided Satisfactory Home-based End-of-life Care to a Terminal Cancer Patient
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- Ogata Yukiko
- School of Nursing, Fukuoka Prefectural University
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- Okada Mari
- Faculty of Health and Welfare, Hiroshima Prefectural University
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- Ichiki Naomi
- School of Nursing, Fukuoka Prefectural University
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- Noguchi Shinobu
- Hokusetu General Hospital
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- Yamashita Kiyoka
- School of Nursing, Fukuoka Prefectural University
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- Matsuo Kazue
- Faculty of Nursing, Fukuoka Jo Gakuin Nursing University
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- Masaki Naoko
- Faculty of Nursing, Japanese Red Cross Hiroshima College of Nursing
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- Mitoku Kazuko
- School of Nursing, University of Human Environments
Bibliographic Information
- Other Title
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- 終末期がん療養者の満足な在宅看取りを行った配偶者の介護体験
- シュウマツキ ガン リョウヨウシャ ノ マンゾク ナ ザイタク ミトリ オ オコナッタ ハイグウシャ ノ カイゴタイケン
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Abstract
<p>Purpose: The objective of this study was to shed light on the experiences of spouses who were able to provide satisfactory home-based end-of-life care to their husband/wife with terminal cancer.</p><p>Method: We conducted an analysis using the modified grounded theory approach. The study participants were eight spouses who were satisfied with home-based end-of-life care that they provided in accordance with their husband/wife’s wishes.</p><p>Results: The caregiving experiences of spouses who provided satisfactory home-based end-of-life care consisted of three processes and eight categories. At the stage of ‘home-based end-of-life care selection and decision-making,’ spouses were “building a marital relationship that respects the patient’s desired way of living”, and “making tough decisions leading to home-based care”, which are mutually related. Next, at the stage of ‘independent caregiving for home-based end-of-life care for a terminal cancer patient,’ spouses “spontaneously acted to take on home-based end-of-life care as a spouse” and “expanded the limits of their sense of burden in order to provide home-based end-of-life care.” They did this by “obtaining support from visiting nurses” and “obtaining support from their primary care physician.” In doing this, spouses took action to “fulfill the wishes of the patient within the time they had left.” At the stage of ‘growth after end-of-life care,’ spouses “embarked on a new way of living as a bereaved person.”</p><p>Discussion: The caregiving experiences of spouses who provided satisfactory home-based end-of-life care had the stages of ‘home-based care selection and decision-making’ and ‘independent caregiving for end-of-life care for a terminal cancer patient.’ By analyzing the experiences of spouses who provided satisfactory home-based end-of-life care, we discovered an independent caregiving process. The results of this study could serve as reference for the promotion of home-based care for patients who are heavily dependent on medical care.</p>
Journal
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- Journal of Japan Academy of Community Health Nursing
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Journal of Japan Academy of Community Health Nursing 20 (2), 64-72, 2017
Japan Academy of Community Health Nursing
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Details 詳細情報について
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- CRID
- 1390282763033897216
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- NII Article ID
- 130007437333
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- NII Book ID
- AA11362530
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- ISSN
- 24320803
- 13469657
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- NDL BIB ID
- 028799510
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- Text Lang
- ja
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- Data Source
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- JaLC
- NDL
- CiNii Articles
- KAKEN
- Crossref
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- Abstract License Flag
- Disallowed