家族性大腸腺腫症患者のライフイベントに関する調査  [in Japanese] Investigation of Life Events in Patients with Familial Adenomatous Polyposis  [in Japanese]

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Abstract

家族性大腸腺腫症患者6 人を対象に就学・就労・結婚・挙児というライフイベントにおける体験を調査した.その結果,治療開始による学生生活への影響,職業の選択・就職活動・出世や部署異動の際の就労への影響,パートナーとの関係で疾患が与える影響への懸念が示された.挙児希望に対する直接的影響はみられなかったが,子どもの成長とともに遺伝に対する心配は強くなっていた.ライフイベントは家系員の罹患経過および自身の身体状況とともに疾患の受け止めに影響しており,医療者は積極的にその体験に目を向け,ともに対応策を検討していく必要性があると思われる.

The present study investigated experiences during life events, specifically school life, employment, marriage, and childbirth and child rearing, in 6 patients with familial adenomatous polyposis (FAP). Various influences of FAP on life events were narrated as follows: effects of beginning therapy on student lifestyle; effects on career selection, job hunting, career advancement and departmental transfer; and effects on spousal relationships. No direct effects were experienced regarding childbirth and child rearing; however, concern regarding genetic inheritance increased as children aged. Life events were affected by acceptance of the disease as well as the progress of family members diagnosed with FAP and personal physical condition. The present findings demonstrate the need for medical professionals to actively consider these experiences and investigate solutions for related issues.

Journal

  • JOURNAL OF FAMILIAL TUMORS

    JOURNAL OF FAMILIAL TUMORS 13(2), 39-43, 2013

    The Japanese Society for Familial Tumors

Codes

  • NII Article ID (NAID)
    130007531033
  • Text Lang
    JPN
  • ISSN
    1346-1052
  • Data Source
    J-STAGE 
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