Employment Status and Contributing Factors for Adults with Congenital Heart Disease

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  • 成人先天性心疾患患者の就業状況とその背景要因

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Abstract

<p>Background: Working is one of the important concerns in transitional care for adults with congenital heart disease (ACHD) because, apart from offering them financial autonomy, it also connects them with the society. Hence, this study aimed to explore the employment status of ACHD by sex and the factors influencing the employment status.</p><p>Methods: In this study, 193 Japanese ACHD patients (mean age: male 33.62 years/female 32.69 years, 89 males, no students included) completed the patients’ characteristics form, including the employment status and the degree of impact on their ability to work due to heart disease and also completed the quality of life (QOL) form, comprising the Linear Analog Scale and the Satisfaction with Life Scale (SWLS).</p><p>Results: In the study group, 13 (14.6％) of 89 male patients and 13 (12.5％) of 104 female patients did not have a job. These rates were higher than the national standard values in Japan (male, 5.0％; female, 2.9％). Among those patients, only one male and one female stated their illness as a reason for their unemployment. The main factor of males’ unemployment was young age, whereas for females, it was related to their disease complexity. Unemployed patients showed significantly lower scores in QOL and the SWLS.</p><p>Conclusion: Although most ACHD patients can join the workforce, a higher percentage of ACHD patients do not work and find it challenging to have a career than regular people. Therefore, as unemployed patients have a low QOL and SWLS, it is clear that work is crucial for them to have a mentally and emotionally stable and fulfilling life.</p>

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