Significance and potential of self-management research for HTLV-1 associated myelopathy: review of self-management for people with multiple sclerosis

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Author(s)

    • Yamaguchi Saori
    • Department of Fundamental and Clinical Nursing, School of Health Sciences, Faculty of Medicine, Kagoshima University, Japan
    • Yatsushiro Rika
    • Department of Fundamental and Clinical Nursing, School of Health Sciences, Faculty of Medicine, Kagoshima University, Japan

Abstract

<p><b>Objective and Methods:</b> A total of 21 published studies on self-management for people with multiple sclerosis (MS) were reviewed to explore the significance and potential of self-management for people with HTLV-1 associated myelopathy (HAM). These studies were classified based on three concepts: self-management regimen and preferences, context of self-management, and outcomes of self-management.</p><p><b>Results:</b> Self-management regimens for people with MS include medical, role, and emotional management. Moreover, self-management regimens are closely associated with the context of self-management, emphasizing the importance of investigating contextual factors and regimens concurrently. Quality of life (QOL) has been evaluated as an outcome of self-management, and self-management has been shown to have both positive and negative effects on the QOL of people with MS. However, insufficient studies focus on self-management regimens and patient preferences; further investigation is necessary to develop effective self-management interventions that reflect the often unique nature of the disease for each individual. The characteristics of HAM are also unique to individual patients. Therefore, investigation of people with HAM in particular is required.</p><p><b>Conclusion:</b> This literature review examined the significance of investigating self-management for people with HAM.</p>

Journal

  • Journal of Rural Medicine

    Journal of Rural Medicine 14(1), 7-25, 2019

    THE JAPANESE ASSOCIATION OF RURAL MEDICINE

Codes

  • NII Article ID (NAID)
    130007655808
  • Text Lang
    ENG
  • ISSN
    1880-487X
  • Data Source
    J-STAGE 
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