Life Ethnography of a Life of a Person with Intractable Neurological Diseases

• Hidaka Tomoo

  日本学術振興会特別研究員

• Mizuki Shodo

  学校法人筑紫女学園

• Sato Tatsuya

  立命館大学文学部

Bibliographic Information

Other Title

• 神経難病患者の生を捉えるライフ･エスノグラフィ
• 神経難病患者の生を捉えるライフ･エスノグラフィ : 在宅療養の場の厚い記述から
• シンケイ ナンビョウ カンジャ ノ ナマ オ トラエル ライフ ・ エスノグラフィ : ザイタク リョウヨウ ノ バ ノ アツイ キジュツ カラ
• Based on "Thick Description" of Home-care
• 在宅療養の場の厚い記述から

Abstract

In this study, we focused on the life of a patient with amyotrophic lateral sclerosis in a home-care situation and described his relationship with caregivers. The purpose of this study was to present a complete picture of a patient in home care and the actor who is most important in home activities through participant observation. The results of analysis1 can be summarized as follows: (1) the position of the patient includes not only "patient" but also "liver"; (2) the top priority of the rule of the field is to minimize his passivity; (3) the potential of communication of the patient involves the rule of the field. Analysis2 revealed that a technical peer supporter provides communication support suitable for the field.

Journal

• Japanese Journal of Qualitative Psychology

  Japanese Journal of Qualitative Psychology 11 (1), 96-114, 2012

  Japanese Association of Qualitative Psychology

Keywords

• ライフ・エスノグラフィ
• 神経難病患者
• 厚い記述
• life ethnography
• intractable neurological diseases
• thick description

Details

• CRID: 1390003825197043456
• NII Article ID: 130007871458
• NII Book ID: AA11647315
• DOI: 10.24525/jaqp.11.1_96
• ISSN: 24357065
• NDL BIB ID: 029364290
• Web Site: http://id.ndl.go.jp/bib/029364290
• Web Site: https://ndlsearch.ndl.go.jp/books/R000000004-I029364290
• Text Lang: ja
• Data Source:
  • JaLC
  • NDL
  • CiNii Articles
  • KAKEN
• Abstract License Flag: Disallowed