Experience of Family Caregivers Providing at-Home Care for People Diagnosed with Dementia with Lewy Bodies

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  • レビー小体型認知症との診断を受けてから在宅で認知症の人を看る家族の介護体験
  • レビー ショウタイガタ ニンチショウ ト ノ シンダン オ ウケテ カラ ザイタク デ ニンチショウ ノ ヒト オ ミル カゾク ノ カイゴタイケン

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Abstract

<p>  The purpose of this study was to describe the experience of family caregivers providing at-home care for people with dementia with Lewy bodies (DLB) following a diagnosis. Semi-structured interviews of five family caregivers of people with DLB were conducted. As a result, we identified nine categories for family caregiver experiences. Family caregivers were “continuously overwhelmed due to accumulating fatigue from the amplification of daily care”, while feeling “confusion due to hallucinations”, “managing various other symptoms” and “increasing caregiver burden due to side effects of drugs”. “Correspondence of inappropriate medical professionals who are dissatisfied” perpetuated this negative cycle. To escape this cycle, it is necessary “to seek and accept the cooperation of other supportive people”. These include experienced family caregivers who are able to “predict and respond to various symptoms”, “are aware of the new family roles”, and “have made more informed choices for people with DLB and other family caregivers”. DLB is a systemic disease, affecting multiple organs and presenting a variety of symptoms which make it difficult to understand. Therefore, it was suggested that professionals should first acquire in-depth knowledge of DLB and then support the physical and mental aspects of the family caregiver while collaboratively considering countermeasures.</p>

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