Retinitis pigmentosa: patients' fight for sight : part 2 of the proceedings of the 4th Congress of the International Retinitis Pigmentosa Association (IRPA) Bad Nauheim, West Germany
著者
書誌事項
Retinitis pigmentosa: patients' fight for sight : part 2 of the proceedings of the 4th Congress of the International Retinitis Pigmentosa Association (IRPA) Bad Nauheim, West Germany
（Advances in the biosciences, v. 63）
Pergamon Press, 1988
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注記
Includes bibliographies and index
内容説明・目次
内容説明
This volume covers the social and medical aspects of patient care in retinitis pigmentosa (RP), experiences of patients as well as national and international activities of the RP societies. The patient-related problems include such topics as genetic counselling, technical aids for blind and visually handicapped, therapy trials, human services, psychological, social, vocational and familial problems.
目次
- (partial) Researchers help patients - patients help researchers towards the cooperation between researcher and patients: Establishing a retinal screening centre, patient files, and future data base, G Cousins. The promotion of research by the German Retinitis Pigmentosa Society (DRPV), R von Gizycki. Technical aids: Help towards autonomy: Indications for vision aids in retinitis pigmentosa, W Hammerstein. Advice on the use of residual vision, D Jger. Therapy: The predicament of the RP patient - a dilemma, H Gussek. Methods for monitoring treatment in retinitis pigmentosa, R Hennekes. Genetics: RP patients and molecular genetic research: a study in acceptability, K Ruther et al. Living with RP - family, career and everyday life: Living with RP - patients' mobility, life style and leisure activities - workshop report, B Tasler. The problems of the visually handicapped in choosing a career - training and retraining, M Ersing. The RP societies - membership, public relations, bookkeeping, fundraising: How to integrate different groups of members into a society, H v Velzen. The current state of public relations work in the DRPV, E Lehning-Fricke & W Wehrhah
- . Appendix: Program of the Congress. National RP Societies. Addresses. Index.
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