Prader-Willi syndrome : home, school and community
著者
書誌事項
Prader-Willi syndrome : home, school and community
Chapman & Hall, 1992
- uk : pbk
- us
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注記
Includes bibliographical references (p. [205]-216) and indexes
内容説明・目次
内容説明
"Prader-Willi Syndrome: Home, School and Community" describes research and practice relating to this condition. Relatively little has been written about the complex social, educational and behavioural issues that arise until now. This is the first book to discuss the concerns and options and provide practical examples. It is easy to read, addressing the major problems from the child's and family's perspectives. Recommendations cover childhood and adult phases of development. Practical suggestions for dealing with a range of issues concerning parents are included. Based on a study of families with a child or adult with Prader-Willi, the behavioural and social challenges including quality of life at school, home and in the community are examined. The challenges and possibilities which are emerging concerning behavioural and social intervention are anticipated. This book is recommended to all professionals in health, education and social services working with those with Prader-Willi syndrome. There is information that parents may also find useful.
目次
- Vignettes
- review of non-medical literature
- Canadian PWS child characteristics
- Canadian PWS parent characteristics
- intervention strategies
- coping in the family
- coping in the community
- quality of life.
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