Home and community care for chronically ill children
Author(s)
Bibliographic Information
Home and community care for chronically ill children
Oxford University Press, 1993
Available at 17 libraries
  Aomori
  Iwate
  Miyagi
  Akita
  Yamagata
  Fukushima
  Ibaraki
  Tochigi
  Gunma
  Saitama
  Chiba
  Tokyo
  Kanagawa
  Niigata
  Toyama
  Ishikawa
  Fukui
  Yamanashi
  Nagano
  Gifu
  Shizuoka
  Aichi
  Mie
  Shiga
  Kyoto
  Osaka
  Hyogo
  Nara
  Wakayama
  Tottori
  Shimane
  Okayama
  Hiroshima
  Yamaguchi
  Tokushima
  Kagawa
  Ehime
  Kochi
  Fukuoka
  Saga
  Nagasaki
  Kumamoto
  Oita
  Miyazaki
  Kagoshima
  Okinawa
  Korea
  China
  Thailand
  United Kingdom
  Germany
  Switzerland
  France
  Belgium
  Netherlands
  Sweden
  Norway
  United States of America
Note
Includes bibliographical references (p. 137-148) and index
Description and Table of Contents
Description
With advances in medical technology and treatment, at least 90 per cent of children with severe illnesses now survive to young adulthood and beyond. Most children with complex and chronic illnesses no longer need to remain in the hospital for care; their portable medical equipment enables them to live with their families and to attend schools in their communities. The increased survival of children with severe illnesses and the growing number who live at home have created new demands on the health care, education, and community services systems. This important book lays common ground for all who have reason and responsibility to enhance the capability of families to care for their ill children over the long term at home. The authors, a multidisciplinary team of a paediatrician, social worker, and health administrator/analyst, base their examination of the issues involved in out-of-hospital care on a thorough review of the literature and on-site visits to ten programs in different parts of the country that care for chronically ill children.
The book describes the population of children in home care and the reasons home-based services have increased in the past decade, and analyses the impact that providing care at home has on families. It examines the organization and delivery of services, and discusses the quality of care, defining criteria for its assessment. Financial issues are then addressed, with the focus on the cost to families and on the strengths and weaknesses of private and public programs that pay for care. The book concludes with recommendations for changes in the organization and provision of services, quality assurance, and financing of care. The comments and concerns of the families the authors visited are interwoven throughout the text, since it is the families' problems which best define the issues.
Table of Contents
- Introduction
- 1. The Impact on Families
- 2. The System of Services for Families
- 3. Quality of Home Care
- 4. Costs of Care
- 5. Paying for Care
- 6. Recommendations
by "Nielsen BookData"