Chronic illness : from experience to policy
著者
書誌事項
Chronic illness : from experience to policy
（Medical ethics series / David H. Smith and Robert M. Veatch, Editors）
Indiana University Press, c1995
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注記
Includes bibliographical references and index
内容説明・目次
内容説明
Through first-person accounts and the perspectives of literature, medicine, sociology, philosophy, religion, and the medical humanities, this book explores what it means to live with chronic illness on an everyday basis, as well as considering the implications of this experience for social policy, health care, bioethics, and the professions. The contributors are George J. Agich, David Barnard, Ronald A. Carson, Ruthanne L. Curry, John W. Douard, Sue E. Estroff, Muriel R. Gillick, Arthur Kleinman, Lonnie D. Kliever, and S. Kay Toombs.
目次
Preface Acknowledgments Part One 1. Sufficient Unto the Day: A Life with Multiple Sclerosis S. Kay Toombs 2. The Exceptional Family: Walking the Edge of Tragedy and Transformation Ruthanne L. Curry 3. Chronic Illness and the Dynamics of Hoping David Barnard 4. Rage and Grief: Another Look at DaxOs Case Lonnie D. Kliever 5. Whose Story Is It Anyway? Authority, Voice, and Responsibility in Narratives of Chronic Illness Sue E. Estroff Part Two 6. Beyond Respect to Recognition and Due Regard Ronald A. Carson 7. Chronic Illness and Freedom George J. Agich 8. Disability and the Persistence of the ONormalO John W. Douard 9. The Social Course of Chronic Illness: Delegitimation, Resistance, and Transformation in North American and Chinese Societies Arthur Kleinman 10. The Role of the Rules: The Impact of the Bureaucratization of Long-Term Care Muriel R. Gillick Contributors Index
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