Starting and sustaining genetic support groups

著者
    • Weiss, Joan O.
    • Mackta, Jayne S.
書誌事項

Starting and sustaining genetic support groups

Joan O. Weiss and Jayne S. Mackta

Johns Hopkins University Press, 1996

タイトル別名

Starting & sustaining genetic support groups

Genetic support groups

この図書・雑誌をさがす
注記

Includes bibliographical references (p. [141]-149) and index

内容説明・目次

内容説明

This book is a guide to genetic support groups--what they are, how to begin one, how to keep an existing group operating and successful. Because a support group may be started, run, and joined by genetics professionals or laypeople, the text contains information usable by a range of readers.The book opens with a brief discussion of why people seek self-help organizations in general and genetic support groups in particular. The bulk of the text then explains how to organize a genetic support group (getting started, finding a leader), how to sustain the group (developing educational materials and newsletters, conducting a meeting, fund-raising), and how to organize peer support training programs. The authors present examples of existing groups' experiences, sample budgets and news releases, tables and checklists, and other specific information to guide readers.

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