When science offers salvation : patient advocacy and research ethics
著者
書誌事項
When science offers salvation : patient advocacy and research ethics
Oxford University Press, 2001
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注記
Includes bibliographical references and index
内容説明・目次
内容説明
Biomedical research today has a high public profile, largely because of patient advocacy. Following in the footsteps of HIV/AIDS activists, advocates representing an array of patient groups are now vocal partners in the research enterprise. This book shows how advocates have transformed health research, often - but not always - for the better.
Dresser is the first to examine patient advocacy through the lens of research ethics. She exposes the bright and dark sides of patients' expanded opportunities to enroll in clinical trials and join researchers in planning and evaluating studies. She considers the virtues and drawbacks of giving patients more influence over how the government invests its research dollars. She argues that advocates should do more to promote ethical human studies and responsible media reporting about research.
Patient advocates can help make research more ethical, but advocacy raises ethical issues of its own. This book clearly and vividly recounts the advocacy contribution to research and explores the thorny ethical issues facing research advocates.
目次
- 1. Patient Advocacy and the Changing Research Environment
- 2. Advocates on the Research Team - Shaping and Assessing Science
- 3. Hope Versus Hypothesis Testing: Expanding Access to Experimental Interventions
- 4. Fairness in Allocating Government Research Funds
- 5. Public Participation in Allocating Government Research Funds
- 6. Advocates in Research Ethics Oversight: A Voice for the Public?
- 7. Advocacy for Accuracy in Research Reporting
- 8. Research Advocacy Today and Tomorrow
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