Reflections from a different journey : what adults with disabilities wish all parents knew
著者
書誌事項
Reflections from a different journey : what adults with disabilities wish all parents knew
McGraw-Hill, c2004
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注記
Includes bibliographical references (p. 201-205)
内容説明・目次
内容説明
Title: "Reflections From a Different Journey" Author: Klein ISBN: 0071422692 Category: Parenting Trim Size: 6 x 9 UPC: 639785385547. Most parents of children with disabilities lack personal experience with adults with disabilities. Hearing from people who have lived the disability experience can provide all parents with essential information about the possibilities for their children. "Reflections from a Different Journey" comprises forty inspiring and realistic essays written by successful adult role models who share what it is like to grow up with a disability.Compiled by two award-winning advocates for the disabled, each eloquently written essay is an insightful source of wisdom, inspiration, and emotional support as well as a rare glimpse inside the lives and minds of people with many different disabilities - cerebral palsy, down syndrome, autism, learning disabilities, deafness, blindness, mental illness, developmental disabilities, spina bifida, muscular dystrophy, attention deficit hyperactivity disorder, congenital amputation, and chronic health conditions.
In preparing their essays, the authors were each asked to write about something they wished their own parents had read or been told while they were growing up.The essays, which demonstrate that, first and foremost, people with disabilities are human beings with the same needs and desires as people without disabilities, are arranged thematically: 'Love Me and Accept Me as I Am' essays express appreciation for parents who provided unconditional love and a sense of belonging and accepted them as whole people - including that part of them considered to be a disability. "Parents Are the Most Important Experts" essays describe how their parents addressed their unique needs and became the most important experts in their lives. 'Parental Expectations' essays present different approaches to expectations and standards and encourage every child to have hopes and aspirations. 'Sexuality' essays explore how all children need to talk about and learn about intimacy and sexuality.'Education About Disability' essays explain why it is important for parents and children to learn all about a child's disability and how to facilitate necessary accommodations so that each child can enjoy a full life.
The foreword is written by Marlee Matlin, the Academy Award-winning actress who is deaf. The afterword is written by the book's coeditor, John D. Kemp, a successful attorney and advocate for the disabled who was born without arms and legs.Brimming with a wealth of life-affirming lessons, "Reflections from a Different Journey" offers many specific suggestions for parents and family members of people with disabilities, older disabled children, and education and health care professionals. Stanley Klein, Ph.D., is a clinical psychologist and frequent speaker to parents and health care and education professionals, has worked with children with disabilities and their parents for fifty years, and has received numerous national awards for his work. A cofounder and former editor in chief of "Exceptional Parent" magazine, Dr. Klein has coedited "The Disabled Child and the Family", "It Isn't Fair: Siblings of Children with Disabilities", "You Will Dream New Dreams: Inspiring Personal Stories by Parents of Children with Disabilities", and "From There to Here: Stories of Adjustment to Spinal Cord Injury". He lives in Gloucester, Massachusetts.
John Kemp is a successful Washington, DC, attorney and lifelong advocate for the rights of people with disabilities. He is a frequently sought-after speaker, giving up to fifty keynote presentations each year.Kemp has been recognized for his work on behalf of people with disabilities, including service as the 1960 National Easter Seal Society Poster Child, 1991 membership in the Horatio Alger Award of Distinguished Americans, the Freedom of the Human Spirit Award from the International Center for the Disabled, and an Honorary Doctorate of Laws and the Distinguished Alumni Fellow Award from his alma mater, Washburn University Law School.'As the mother of a son with profound physical disabilities, I want every parent of a child in similar circumstances to read this remarkable eye-opening book. The lessons it brings from adults with disabilities are essential to giving our kids the start they deserve and to understanding how close their hopes and aspirations are to kids we see as 'normal' - Judy Woodruff.
'Advice to parents about how to raise and guide their children with disabilities is rarely offered in such a compelling and insightful way as it is in "Reflections from a Different Journey". Nobody says it any better than people with disabilities themselves when topics such as risk taking, social acceptance, envisioning a life of greater independence, and all the challenges confronting any parent arise. These essays will educate, inform, and entertain every parent who wants to know how to be the very best parent he or she can be' - Senator Robert Dole.'The significant education for those helping, supporting, advising, and motivating people with disabilities is in listening to them. These writers with disabilities are brilliant in portraying their lives with pathos and even humor. Professionals and parents trying to achieve equality for people with disabilities must read this masterpiece' - Henry Betts, M.D., former medical director and CEO, Rehabilitation Institute of Chicago.'A fabulous contribution to the field of disabilities. Parents everywhere need to read this book. Everyone involved with children with disabilities needs to read it.
It answers so many questions about what works and what doesn't. And it answers the questions in the most reliable manner - in the voice of the son or daughter' - Patricia McGill Smith, Senior Policy Advisor, National Down Syndrome Society.
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