Palliative care for infants, children, and adolescents : a practical handbook

著者

• Carter, Brian S.
• Levetown, Marcia

書誌事項

Palliative care for infants, children, and adolescents : a practical handbook

edited by Brian S. Carter and Marcia Levetown ; foreword by Kathleen M. Foley

Johns Hopkins University Press, c2004

• : hard
• : pbk

注記

Includes bibliographical references and index

収録内容

• Epidemiology and health services research / Chris Feudtner and Stephen R. Connor
• Goals, values, and conflict resolution / Carson Strong ... [et al.]
• Barriers, education, and advocacy in palliative care / Joel Frader ... [et al.]
• Decision making in pediatric palliative care / Yarrow McConnell, Gerri Frager, and Marcia Levetown
• Communication at the end of life / Ross M. Hays ... [et al.]
• Psychosocial and spiritual needs of the child and family / Stacy Orloff ... [et al.]
• Holistic management of symptoms / Richard Hain ... [et al.]
• Bereavement / Betty Davies ... [et al.]
• The other side of caring: caregiver suffering / Cynda H. Rushton
• The high-risk newborn / Suzanne Toce ... [et al.]
• Palliative care in the pediatric intensive care unit / Marcia Levetown, Stephen Liben, and Marylene Audet
• Palliative care in the home, school, and community / Bruce P. Himelstein ... [et al.]
• The child with a genetic condition / Sara Perszyk and Anthony Perszyk
• The child with HIV infection / Brian S. Carter ... [et al.]
• Children and adolescents with cancer / Joanne M. Hilden ... [et al.]

内容説明・目次

巻冊次

: hard ISBN 9780801879692

内容説明

Palliative care for terminally ill adults is receiving growing recognition as a major component in medical care. Yet far less is known or understood about the needs of infants and children with life-limiting conditions. Developed by leading researchers and practitioners from relevant disciplines, this practical guide provides professionals involved in pediatric end-of-life care with comprehensive information for hands-on care in a single volume. Early chapters present the epidemiology of palliative pediatrics, ethical principles, education, and advocacy. Contributors next address the decision-making process, holistic symptom management, communication with the child and family, as well as their psychological and spiritual needs, and such issues as bereavement and caregiver suffering. Individual chapters focus on palliative care in specific settings (NICU, PICU, home, school, and community) and for major conditions (genetic disease, HIV, and cancer). Case studies discuss the experience and perspective of parents. Intended for primary care doctors, pediatric practitioners and specialists, home care nurses, hospice workers, and pastoral counsellors.

巻冊次

: pbk ISBN 9780801880056

内容説明

Palliative care for terminally ill adults is receiving growing recognition as a major component in medical care. Yet far less is known or understood about the needs of infants and children with life-limiting conditions. Developed by leading researchers and practitioners from relevant disciplines, this practical guide provides professionals involved in pediatric end-of-life care with comprehensive information for hands-on care in a single volume. Early chapters present the epidemiology of palliative pediatrics, ethical principles, education, and advocacy. Contributors next address the decision-making process, holistic symptom management, communication with the child and family, as well as their psychological and spiritual needs, and such issues as bereavement and caregiver suffering. Individual chapters focus on palliative care in specific settings (NICU, PICU, home, school, and community) and for major conditions (genetic disease, HIV, and cancer). Case studies discuss the experience and perspective of parents. Intended for primary care doctors, pediatric practitioners and specialists, home care nurses, hospice workers, and pastoral counselors, the book also includes a list of additional resources and support organizations for professionals and family members. ContributorsStephen R. Connor, Ph.D., Vice President, National Hospice and Palliative Care Organization, Alexandria, VirginiaLynn Czarniecki, M.S.N., C.N.S., Advance Practice Nurse, Department of Pediatrics, New Jersey Medical School, Newark, New JerseyBetty Davies, R.N., Ph.D., Professor and Chair, Department of Family Health Care Nursing, University of California at San Francisco, San Francisco, CaliforniaDeborah Dokken, M.P.A., Parent and Family Advocate, Chevy Chase, MarylandDale Evans, R.N., Ph.D., Vice President, Hospice and Community Services, Community Nursing Services, Salt Lake City, UtahChris Feudtner, M.D., Ph.D., M.P.H., Director of Research and Attending Physician for PACT (Palliative Care Team), Division of General Pediatrics, Children's Hospital of Philadelphia, Philadelphia, PennsylvaniaW. Jeffrey Flowers, M.Div., Director of Pastoral Counseling, Medical College of Georgia Hospital and Clinics, Augusta, GeorgiaJoel Frader, M.D., Professor of Pediatrics, Medical Ethics, and Humanities, Northwestern University, Children's Memorial Hospital, Chicago, IllinoisGerri Frager, R.N., M.D., F.R.C.P.C., Medical Director, Pediatric Palliative Care Service, IWK Health Centre, Halifax, Nova Scotia, CanadaDavid R. Freyer, D.O., Associate Professor of Pediatrics and Human Development, Michigan State University College of Human Medicine; Division of Pediatric Hematology-Oncology and Bone Marrow Transplantation, DeVos Children's Hospital, Grand Rapids, MichiganSarah Friebert, M.D., Director, Division of Pediatric Palliative Care, Children's Hospital of Akron, Akron, OhioJ. Russell Geyer, M.D., Professor of Pediatrics, Division of Hematology-Oncology, Children's Hospital and Regional Medical Center, Seattle, WashingtonMary Jo Gilmer, R.N., M.B.A., Ph.D., Associate Professor of Nursing, Vanderbilt University School of Nursing, Nashville, TennesseeSam Grubman, M.D., Pediatrician, Department of Pediatrics, Saint Vincent's Hospital, New York, New YorkMaria Gudmundsdottir, R.N., Ph.D., Postgraduate Research Faculty, Department of Family Health Care Nursing, University of California at San Francisco School of Nursing, San Francisco, CaliforniaRichard Hain, M.B.B.S., M.D., M.Sc., M.R.C.P., F.R.C.P.C.H., Senior Lecturer in Paediatric Palliative Care, University of Wales College of Medicine, Llandough Hospital, Cardiff, WalesGeraldine Haynes, R.N., B.S.N., Nursing and Palliative Care Consultant, Kirkland, WashingtonRoss M. Hays, M.D., Professor, Departments of Rehabilitation Medicine and Pediatrics, University of Washington School of Medicine, and Director, Palliative Care Consulting Service, Children's Hospital and Medical Center, Seattle, WashingtonJoanne M. Hilden, M.D., Chair, Department of Pediatric Hematology-Oncology, and Medical Director, Pediatric Palliative Care, The Children's Hospital at The Cleveland Clinic, Cleveland, OhioBruce P. Himelstein, M.D., F.A.A.P., Pediatric Palliative Care Program Director, Children's Hospital of Wisconsin; Associate Professor, Division of Hematology-Oncology, Department of Pediatrics, Medical College of Wisconsin, Milwaukee, WisconsinSteven R. Leuthner, M.D., M.A., Associate Professor of Pediatrics and Bioethics, Medical College of Wisconsin, Milwaukee, WisconsinTiffany Levinson, R.N., M.S., F.N.P., Stem Cell Transplant Nurse Practitioner, Children's Memorial Hospital, Chicago, IllinoisStephen Liben, M.D., F.R.C.P., Director, Palliative Care Program, Montreal Children's Hospital, Montreal, Quebec, CanadaYarrow McConnell, B.Sc., Student, Faculty of Medicine, Dalhousie University, Halifax, Nova Scotia, CanadaElaine Morgan, M.D., Associate Professor of Pediatrics, Department of Hematology-Oncology, Children's Memorial Hospital, Northwestern University, Chicago, IllinoisJason Morrow, M.D., Ph.D., University of Texas Medical Branch, Galveston, TexasJames Oleske, M.D., M.P.H., Francois-Xavier Bagnoud Professor of Pediatrics, and Director, Division of Pulmonary, Allergy, Immunology, and Infectious Diseases, Department of Pediatrics, New Jersey Medical School, Newark, New JerseyStacy F. Orloff, Ed.D., L.C.S.W., Manager, Child and Family Support Program, The Hospice of the Florida Suncoast, Largo, FloridaAnthony Perszyk, M.D., Geneticist and Pediatrician, Division of Genetics, Nemours Children's Clinic, Jacksonville, FloridaSara Perszyk, R.N., B.S.N., Pediatric Palliative Care and Hospice Nurse, Child and Family Support Program, The Hospice of the Florida Suncoast, Largo, FloridaKathleen Quance, M.S., C.C.L.S., Counselor, Child and Family Support Program, The Hospice of the Florida Suncoast, Largo, FloridaCynda H. Rushton, D.N.Sc., R.N., F.A.A.N., Associate Professor of Nursing, Faculty, Phoebe Berman Bioethics Institute, and Coordinator, Harriet Lane Compassionate Care, Johns Hopkins University and Children's Center, Baltimore, MarylandJohn M. Saroyan, M.D., Fellow, Pediatric Pain and Anesthesia, College of Physicians and Surgeons, Columbia University, New York, New YorkCarson Strong, Ph.D., Professor of Human Values and Ethics, University of Tennessee Health Sciences Center, Memphis, TennesseeLizabeth Sumner, R.N., B.S.N., Director of the Children's Program, San Diego Hospice Corporation, San Diego, CaliforniaSuzanne Toce, M.D., Professor of Pediatrics, St. Louis University; Attending Neonatologist, Cardinal Glennon Children's Hospital, St. Louis, MissouriErwin Veale Jr., M.Div., Associate Director of Pastoral Care and Counseling, and Chaplain, Children's Medical Center, Medical College of Georgia Health, Inc., Augusta, GeorgiaSharon Weinstein, M.D., Director of Pain Medicine and Palliative Care, Huntsman Cancer Institute, University of Utah, Salt Lake City, UtahJanice Wheeler, M.Ed., President and Founder, Project Joy and Hope for Texas, Pasadena, TexasJ. William Worden, M.Ed., Ph.D., Professor of Psychology, Rosemead Graduate School of Psychology, Laguna Niguel, California

目次

Table of Contents Foreword by Kathleen M. Foley Preface List of Contributors PART I SOCIETAL AND INSTITUTIONAL ISSUES 1 Epidemiology and Health Services Research / Chris Feudtner and Stephen R. Connor 2 Goals,Values, and Conflict Resolution / Carson Strong, Chris Feudtner, Brian S. Carter, and Cynda H. Rushton 3 Barriers, Education, and Advocacy in Palliative Care / Joel Frader, Elaine Morgan, Tiffany Levinson, Jason Morrow, John M. Saroyan, Mary Jo Gilmer, and Brian S. Carter PART II THE CYCLE OF CARE 4 Decision Making in Pediatric Palliative Care / Yarrow McConnell, Gerri Frager, and Marcia Levetown 5 Communication at the End of Life / Ross M. Hays, Geraldine Haynes, J. Russell Geyer, and Chris Feudtner 6 Psychosocial and Spiritual Needs of the Child and Family / Stacy F. Orloff, Kathleen Quance, Sara Perszyk, W. Jeffrey Flowers, and Erwin Veale Jr. 7 Holistic Management of Symptoms / Richard Hain, Sharon Weinstein, James Oleske, Stacy F. Orloff, and Susan Cohen 8 Bereavement / Betty Davies, J. William Worden, Stacy F. Orloff, Maria Gudmundsdottir, Suzanne Toce, and Lizabeth Sumner 9 The Other Side of Caring: Caregiver Suffering / Cynda H. Rushton PART III SPECIAL CARE ENVIRONMENTS AND PATIENT POPULATIONS 10 The High-Risk Newborn / Suzanne Toce, Steven R. Leuthner, Deborah Dokken, Brian S. Carter, and Anita Catlin 11 Palliative Care in the Pediatric Intensive Care Unit / Marcia Levetown, Stephen Liben, and Marylene Audet 12 Palliative Care in the Home, School, and Community / Bruce P. Himelstein, Stacy F. Orloff, Dale Evans, and Janice Wheeler 13 The Child with a Genetic Condition / Sara Perszyk and Anthony Perszyk 14 The Child with HIV Infection / Brian S. Carter, James Oleske, Lynn Czarniecki, and Sam Grubman 15 Children and Adolescents with Cancer / Joanne M. Hilden, Sarah Friebert, Bruce P. Himelstein, David R. Freyer, and Janice Wheeler Appendix: Websites, Organizations, and Other Resources Index

「Nielsen BookData」 より

詳細情報

• NII書誌ID(NCID): BA68600105
• ISBN:
  • 0801879698
  • 080188005X
• LCCN: 2004003175
• 出版国コード: us
• タイトル言語コード: eng
• 本文言語コード: eng
• 出版地: Baltimore
• ページ数/冊数: xvi, 399 p.
• 大きさ: 23 cm
• 分類:
  • LCC : RJ249
  • NLM : WS 200
  • DC22 : 362.17/5/083
• 件名:
  • LCSH : Terminally ill children -- Care -- Handbooks, manuals, etc
  • LCSH : Palliative treatment -- Handbooks, manuals, etc
  • MESH : Palliative Care -- methods -- Adolescent
  • MESH : Palliative Care -- methods -- Child
  • MESH : Palliative Care -- methods -- Infant
  • MESH : Terminal Care -- methods -- Adolescent
  • MESH : Terminal Care -- methods -- Child
  • MESH : Terminal Care -- methods -- Infant
  • MESH : Chronic Disease -- Adolescent
  • MESH : Chronic Disease -- Child
  • MESH : Chronic Disease -- Infant