The stored tissue issue : biomedical research, ethics, and law in the era of genomic medicine
Author(s)
Bibliographic Information
The stored tissue issue : biomedical research, ethics, and law in the era of genomic medicine
Oxford University Press, 2004
Available at 7 libraries
  Aomori
  Iwate
  Miyagi
  Akita
  Yamagata
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  Gunma
  Saitama
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  Tokyo
  Kanagawa
  Niigata
  Toyama
  Ishikawa
  Fukui
  Yamanashi
  Nagano
  Gifu
  Shizuoka
  Aichi
  Mie
  Shiga
  Kyoto
  Osaka
  Hyogo
  Nara
  Wakayama
  Tottori
  Shimane
  Okayama
  Hiroshima
  Yamaguchi
  Tokushima
  Kagawa
  Ehime
  Kochi
  Fukuoka
  Saga
  Nagasaki
  Kumamoto
  Oita
  Miyazaki
  Kagoshima
  Okinawa
  Korea
  China
  Thailand
  United Kingdom
  Germany
  Switzerland
  France
  Belgium
  Netherlands
  Sweden
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  United States of America
Note
Includes bibliographical references and index
Description and Table of Contents
Description
This book provides a thorough, well-balanced analysis of common research practices with banked tissues, DNA, and genetic data. Describing many examples of beneficial tissue research, the authors focus on problematic research practices, controversial cases, and federal and institutional policies that limit the informed choices of patients and research participants. They offer a series of recommendations to help overcome these problems.
Table of Contents
- PART 1: FROM UNQUESTIONED TRADITIONAL PRACTICES TO A CONTROVERSY ABOUT RESEARCH, RIGHTS AND REWARDS
- 1. Unprecedented cases, debatable changes and new challenges
- 2. Concerns about some common research practices
- 3. The controversy over stored tissues, research practices and informed consent
- 4. Molecular genetics: tissue samples in the laboratory
- PART 2: CURRENT LAWS, POLICIES AND RECOMMENDATIONS
- 5. Recommendations and polices in other countries
- 6. The federal regulations for human tissue research: summary and assessment
- 7. The larger legal framework for human tissue research: Moore and beyond
- 8. The NBAC report: recommendations and limitations
- PART 3: ETHICAL, PROFESSIONAL AND LEGAL IMPLICATIONS
- 9. Updating informed consent in the era of genomic medicine
- 10. Beyond informed consent: other ethical issues and concerns
- 11. An agenda for the near future
by "Nielsen BookData"