Quality of life and human difference : genetic testing, health care, and disability

著者

• Wasserman, David T.
• Bickenbach, Jerome Edmund
• Wachbroit, Robert Samuel

書誌事項

Quality of life and human difference : genetic testing, health care, and disability

edited by David Wasserman, Jerome Bickenbach, Robert Wachbroit

（Cambridge studies in philosophy and public policy）

Cambridge University Press, 2005

• : hbk
• : pbk

注記

Includes bibliographical references and index

内容説明・目次

内容説明

This study brings together two important literatures together in the one volume. One concerns the role of quality assessments in social policy, especially health policy. The second concerns ethical and social issues raised by prenatal testing for disability. Hitherto, these two literatures have had little contact with each other: few scholars have written about both, or have compared the two domains in a systematic way, while people with disabilities and disability scholars are underrepresented in recent discussion on health policy and quality of assessment. This book turns the perspectives of disability scholars on issues that have largely been the province of health methodology, policy and philosophy, while angling philosophical policy analysis on problems that have largely been the province of disability scholarship. This volume will be sought after by bioethicists, philosophers, and specialists in disability studies and healthcare economics.

目次

• Contributors
• Acknowledgements
• Introduction David Wasserman, Jerome Bickenbach and Robert Wachbroit
• 1. Assessing quality of life: clinical versus health policy uses Robert Wachbroit
• 2. Predicting genetic disability while commodifying health Anita Silvers
• 3. Preventing genetically transmitted disabilities while respecting persons with disabilities Dan W. Brock
• 4. Disability, ideology and quality of life: a bias in biomedical ethics Ron Amundson
• 5. Values for health states in QALYs and DALYs: desirability versus well-being and worth Erik Nord
• 6. Preventing the existence of people with disabilities Jeff McMahan
• 7. Where is the sin is synecdoche? Prenatal testing and parent-child relationship Adrienne Asch and David Wasserman
• 8. The social context of individual choice Tom Shakespeare
• 9. Disability and health systems assessment Jerome Bickenbach
• Index.

「Nielsen BookData」 より

詳細情報

• NII書誌ID(NCID): BA7363813X
• ISBN:
  • 0521832012
  • 0521539714
• LCCN: 2004062839
• 出版国コード: us
• タイトル言語コード: eng
• 本文言語コード: eng
• 出版地: New York
• ページ数/冊数: xi, 273 p.
• 大きさ: 24 cm
• 分類:
  • LCC : RG628
  • DC22 : 618.3/2042
• 件名:
  • LCSH : Prenatal diagnosis -- Moral and ethical aspects
  • LCSH : Prenatal diagnosis -- Social aspects
  • LCSH : Fetus -- Abnormalities -- Diagnosis
  • LCSH : Genetic screening -- Moral and ethical aspects
  • LCSH : Genetic screening -- Social aspects
  • LCSH : Medical ethics
  • LCSH : Quality of life
• 親書誌ID:
  • BA04385341