Life quality outcomes in children and young people with neurological and developmental conditions : concepts, evidence and practice
著者
書誌事項
Life quality outcomes in children and young people with neurological and developmental conditions : concepts, evidence and practice
(Clinics in developmental medicine)
Mac Keith Press, 2013
大学図書館所蔵 全4件
  青森
  岩手
  宮城
  秋田
  山形
  福島
  茨城
  栃木
  群馬
  埼玉
  千葉
  東京
  神奈川
  新潟
  富山
  石川
  福井
  山梨
  長野
  岐阜
  静岡
  愛知
  三重
  滋賀
  京都
  大阪
  兵庫
  奈良
  和歌山
  鳥取
  島根
  岡山
  広島
  山口
  徳島
  香川
  愛媛
  高知
  福岡
  佐賀
  長崎
  熊本
  大分
  宮崎
  鹿児島
  沖縄
  韓国
  中国
  タイ
  イギリス
  ドイツ
  スイス
  フランス
  ベルギー
  オランダ
  スウェーデン
  ノルウェー
  アメリカ
注記
Includes bibliographical references and index
内容説明・目次
内容説明
Clinics in Developmental Medicine Health care professionals need to understand their patients' views of their condition and its effects on their health and well-being. This book builds on the World Health Organization's concepts of 'health', 'functioning' and 'quality of life' for young people with neurodisabilities: it emphasises the importance of engaging with patients in the identification of both treatment goals and their evaluation. Uniquely, it enables health care professionals to find critically reviewed outcomes-related information. The authors are leaders in their respective research fields and discuss theory, concepts, and evidence, and how these are applied in clinical settings and research applications.
Readership:
Health care professionals working with children and youth with neurological and developmental conditions, wanting to expand their clinical or research horizons.
Frontline service providers, health services and social science researchers, clinical program managers and policy makers concerned with ensuring that their clinical or programmatic services are addressing contemporary issues as effectively as possible.
Students in the health professions and others in related fields (such as social work).
目次
- Chapter 1: Setting the Stage: Introduction and general overview. Gabriel Ronen and Peter Rosenbaum, McMaster University Section A: Concepts and perspectives of outcomes (i) Contemporary Concepts in Health, Disability and Life Quality Chapter 2: Concepts and perspectives on 'health' and 'outcomes'. Gabriel Ronen and Peter Rosenbaum, McMaster University Chapter 3: 'Quality of life' and 'health-related quality of life'.Rebecca Renwick, University of Toronto Chapter 4: 'Health status' and the usefulness of the ICF framework: clinical and program perspectivesOlaf Kraus de Camargo & Nora Fayed, McMaster University Chapter 5: The role of 'participation' in the lives of children and youth with neurodevelopmental conditions.Dana Anaby McGill University & Mary Law, McMaster University (ii) Life Issues in Children and Young People with neurodevelopmental conditions. Chapter 6: A developmental perspective on childhood neurological conditions. Peter Rosenbaum and Gabriel Ronen, McMaster University Chapter 7: Psychological impact of living with a neurodevelopmental condition. David Dunn & Michelle Thorne Indiana University Chapter 8: The characteristics of peer relations among children with neurological and developmental conditions. Tracy Vaillancourt,Jennifer Hepditch, Irene Vitoroulis, Amanda Krygsman, Christine Blain-Arcaro, University of Ottawa & Patricia McDougall, St. Thomas More College, University of Saskatchewan Chapter 9: Romantic relationships and sexual experiences. Diana Wiegerink & Marij Roebroeck Erasmus University Rotterdam (iii) Contextual Factors in the Lives of Children and Young People with neurodevelopmental conditions. Chapter 10: Contextual facilitators: Resilience, Coping and Sense of Coherence. Kim Schonert-Reichl University of British Columbia & Veronica Smith University of Alberta Chapter 11: The family does matter! Lucyna Lach, McGill University Chapter 12: Stigma: A pervasive contextual barrier. Ann Jacoby, University of Liverpool & Joan Austin Indiana University Chapter 13: Advancing the rights of children with neurodevelopmental conditions. Sheila Jennings York University, Toronto Section B: Quality of life outcomes: Methods and measurements Chapter 14: Measurement concepts, standards and perspectives of patient-reported outcomes. Aileen Davis, University of Toronto Chapter 15: Practical considerations in choosing Health, Quality of life and health-related quality of life Scales for Children. Nora Fayed, McMaster University Chapter 16: Complexity in the lives of children and young people with neurological and developmental conditions: The role of qualitative research. Debra Stewart McMaster University Chapter 17: Understanding self and proxy ratings. Gabriel Ronen & Davis Streiner, McMaster University Chapter 18: Ethics of patient reported outcome measures. David Streiner, McMaster University Section C: Opportunities to improve quality life outcomes (i) Education and Disability Chapter 19: Knowledge translation: Accessing and using the best evidence to improve child and family outcome. Iona Novak University of Notre Dame Sydney, Australia, Dianne Russell McMaster University, and Marjolijn Ketelaar University Medical Center Utrecht and Rehabilitation Center De Hoogstraat Utrecht, the Netherlands Chapter 20: Interprofessional Education and Collaboration: Key Approaches for Improving Care. Scott Reeves University of California, San Francisco Chapter 21: A specialized learning environment can enhance the outcomes of children with cognitive impairment. Elizabeth Kerr Hospital for Sick Children Toronto & Miriam Riches OISE-University of Toronto (ii) Growing into Adulthood with a Childhood Neurodevelopmental Condition. Chapter 22: Transition to adulthood: enhancing health and quality of life. Jan Willem Gorter McMaster University, and Marij Roebroeck Erasmus University Chapter 23: Why we need adult specialists for people with childhood onset neurodevelopmental conditions. Bernard Dan, Free University of Brussels Chapter 24: Longitudinal approaches to populations with childhood onset neurodevelopmental conditions: Australian experience with Rett syndrome. Jenny Downs &Helen Leonard, University of Western Australia (iii) Youth, Disability and Society. Chapter 25: Policies, Programs and Practices: The tensions about life quality outcomes. Gina Glidden, McGill University
- & Rachel Birnbaum University of Western Ontario Chapter 26: What is the emerging role of parent and community organizations in health promotion? Primarily a UK experience. Chris Morris & Val Shilling, Medical School Exeter UK Section D: Conclusions and future developments Chapter 27: The ICF and Life Quality Outcomes. Peter Rosenbaum and Gabriel Ronen, McMaster University
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