Mapping fate : a memoir of family, risk, and genetic research

書誌事項

Mapping fate : a memoir of family, risk, and genetic research

Alice Wexler

University of California Press, 1996

  • : pbk

タイトル別名

Mapping fate : a memoir of family, risk, and genetic research : with a new afterword

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注記

"First paperback printing 1996"--T.p. verso

Includes bibliographical references and index

内容説明・目次

内容説明

In "Mapping Fate", Alice Wexler tells the story of a family at risk for a hereditary, incurable, fatal disorder: Huntington's disease, once called Huntington's chorea. That her mother died of the disease, that her own chance of inheriting it was fifty-fifty, that her sister and father directed much of the extraordinary biomedical research to find the gene and a cure, make Wexler's story both astonishingly intimate and scientifically compelling. Alice Wexler's graceful and eloquent account goes beyond the specifics of Huntington's disease to explore the dynamics of family secrets, of living at risk, and the drama and limits of biomedical research. "Mapping Fate" will be a touchstone for anyone with questions about genetic illness and the possibilities and perils of genetic testing.

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