Genetic testing : accounts of autonomy, responsibility, and blame
著者
書誌事項
Genetic testing : accounts of autonomy, responsibility, and blame
（Genetics and society）
Routledge, 2014
- : pbk
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注記
Includes bibliographical references (p. [187]-202) and index
"First published 2011 ... First issued in paperback 2014"--T.p. verso
内容説明・目次
内容説明
Advances in molecular genetics have led to the increasing availability of genetic testing for a variety of inherited disorders. While this new knowledge presents many obvious health benefits to prospective individuals and their families it also raises complex ethical and moral dilemmas for families as well as genetic professionals.
This book explores the ways in which genetic testing generates not only probabilities of potential futures, but also enjoys new forms of social, individual and professional responsibility. Concerns about confidentiality and informed consent involving children, the assessment of competence and maturity, the ability to engage in shared decision-making through acts of disclosure and choice, are just some of the issues that are examined in detail.
目次
1. Introduction 2. Genetic Testing: Technology in Context 3. Neo-liberalism and the New Genetics 4. Rhetorical Discourse Analysis 5. Personal Genomics and the Media 6. Family Accounts of Genetic Responsibility 7. Accounts of Genetic Testing in the Clinic 8. Professional Accounts of Ethical Challenges in Prenatal Clinic 9. Conclusion
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