The person in dementia : a study of nursing home care in the US
著者
書誌事項
The person in dementia : a study of nursing home care in the US
University of Toronto Press, c2016
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注記
Includes bibliographical references (p. 279-298) and index
内容説明・目次
内容説明
Winner of the Society for Medical Anthropology's 2009 New Millennium Award Imagine yourself in advanced age, forced to depend on others for all your basic needs. What would you want to retain of your personal life? This question is at the heart of a set of case studies that examine the lives of nursing home residents who were diagnosed with senile dementia. Based on two years of intensive comparative ethnographic study in a nursing home in a Northeastern American city, The Person in Dementia dramatically contrasts the outcomes of two approaches to dementia care for elders with severely disturbed behaviors: a task-oriented approach based on a biomedical view of disease progression and a flexible person-sustaining approach focusing on individual needs and communication. By emphasizing "personhood," which looks beyond physical and reasoning abilities to a person's will and relationship with others, McLean conceptualizes dementia care as a moral enterprise. She encourages innovative and compassionate elder care and accountability across the spectrum from direct care-givers to nursing home owners to those at the highest levels of government.
McLean also offers a fine-tuned analysis of how relations among direct care-giving, professional, and administrative staff within a facility can dramatically affect the quality of dementia care. The book includes policy recommendations that are geared to long-term care administrators and policy-makers as well as to caregivers, families, and elders with dementia.
目次
Foreword, Robert L. Rubinstein Preface Acknowledgements Introduction Part One: Theoretical and Methodological Considerations in Dementia Care 1. Organic Sources, Signs, and Course of Dementia 2. Perspectives on Dementia and the Person 3. Historical Background to Dementia Caregiving and the Ethnographic Research Methodology 4. The Research Setting and the Residents Part Two: Ethnographic Case Studies and Analyses 5. Historical and Cultural Context of Caregiving in Snow 1: Three Case Studies 6. Historical and Cultural Context of Caregiving in Snow 2: Three Case Studies 7. Comparing Caregiving of Snow 1 with Snow 2 8. Conclusions and Recommendations for Future Dementia Caregiving Part Three: Looking Ahead in Dementia Care 9. External Barriers to Quality Dementia Care 10. Conclusion: Toward a New Vision of Dementia Care Appendix A: Linking Neuropathology to Specific Diseases Appendix B: Dementia as a Demographic Problem: Social and Policy Implications Appendix C: Contributions of Previous Ethnographic Studies to Nursing Home Research Appendix D: This Ethnography as a Journey Appendix E: Methodological Details Works Cited and Recommended Reading Index
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