Disability and care work : state, society and invisible lives

著者

    • Chakravarti, Upali

書誌事項

Disability and care work : state, society and invisible lives

Upali Chakravarti

SAGE Publications India, 2018

  • : hb

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注記

Includes bibliographical references (p. [210]-215) and index

内容説明・目次

内容説明

Disability and Care Work: State, Society and Invisible Lives explores the lived reality of children with disabilities and those involved in parenting and caring for them. It discusses the extent to which the needs of the disabled and their caregivers have been met by health and welfare initiatives, and finds substantial gaps. The book describes vividly how the families of children with disability negotiate the uncertain journey of identifying their child's disability, obtaining a diagnosis, accessing appropriate services and their ongoing efforts to reconcile with and recognise their child's unique situation and mode of being. It critically examines the gendered dimensions involved in caregiving, the role of the state and civil society, and the legal and institutional frameworks in place. The book calls for inclusion of disability treatment at the primary care level, enhanced technology use for diagnosis and information, coordinated national level disability care policy formulation and organised action by the disabled and their caregivers to ensure their needs are addressed by the state and society.

目次

Preface Acknowledgements PART 1 Introduction Framing Disability PART 2 Making Sense of the Narratives-I: Experiencing Disability-Inter Class Dimensions Making Sense of the Narratives-II: Living with Disability Making Sense of the Narratives-III: Invisible Work, Invisible Women-Caring for the Disabled PART 3 State, Society and Disability in India The Welfare State as Paternalistic Caregiver Conclusion: The Moral and Political Economy of Disability and Suffering Bibliography Index

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