Life after a rare brain tumour and supplementary motor area syndrome : awake behind closed eyes

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Bibliographic Information

Life after a rare brain tumour and supplementary motor area syndrome : awake behind closed eyes

Alex Jelly, Adel Helmy and Barbara A. Wilson

(After brain injury : survivor stories)

Routlegde, 2020

  • : pbk

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Note

Includes bibliographical references and index

Description and Table of Contents

Description

This book offers a personal insight into the experience of Alex Jelly, a professional fundraiser who developed a rare brain tumour, a papillary meningioma, which was successfully removed. She was left with Supplementary Motor Area Syndrome and associated problems including motor and speech impairments and a temporary psychosis. Discussing Alex's struggles and triumphs throughout her rehabilitation, this book offers an honest account of her journey from diagnosis to recovery. Part I introduces Alex's early life and employment, symptom onset and diagnosis, treatment and rehabilitation. Part II presents her neurosurgeon, Adel Helmy, and a clinical neuropsychologist, Barbara A. Wilson. Adel provides a medical context by explaining Alex's successful surgery and her post-operative experience. Finally, Barbara concludes with a comprehensive view of Alex's recovery and gives a voice to the therapists and psychologists who worked with Alex throughout her in and outpatient rehabilitation journey. This book provides support, understanding and hope for patients who have suffered a brain tumour, and their families. It is valuable reading for any professional involved in neurorehabilitation, studemts of clinical neuropsychology and those touched by brain injury.

Table of Contents

Preface Acknowledgements Foreword by Dr Jill Winegardner PART ONE: Alex's Story Chapter 1: Life Before Chapter 2: Symptoms & Diagnosis/ The Lime in the Coconut Chapter 3: The Op / Happy Valentine's Day Chapter 4: Early Visits Chapter 5: Psychosis and stories - insights and butterflies Chapter 6: Cancer Chapter 7: Rehabilitation & Recovery Chapter 8: Naturopathy & strategies that have helped Chapter 9: Life Today PART TWO: Background Information from Adel Helmy and Barbara A. Wilson Chapter 10: Meningioma and the brain Adel Helmy Chapter 11: Supplementary Motor Area Syndrome. What is it? Why does it happen? Long term consequences Adel Helmy Chapter 12: Reports from staff and Alex's former partner Barbara A Wilson Chapter 13: Alex at the Oliver Zangwill Centre Chapter 14: Summary and Conclusions Barbara A Wilson References Index

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