Haemophilia in aotearoa New Zealand : more than a bleeding nuisance
Author(s)
Bibliographic Information
Haemophilia in aotearoa New Zealand : more than a bleeding nuisance
（Routledge studies in health and medical anthropology）
Routledge, 2019
- : hbk
Available at / 1 libraries
-
No Libraries matched.
- Remove all filters.
Note
Includes bibliographical references and index
Description and Table of Contents
Description
Haemophilia in Aotearoa New Zealand provides a richly detailed analysis of the experience of the bleeding disorder of haemophilia based on longterm ethnographic research. The chapters consider experiences of diagnosis; how parents, children, and adults care and integrate medical routines into family life; the creation of a gendered haemophilia; the use and ethical dilemmas of new technologies for treatment, testing and reproduction; and how individuals and the haemophilia community experienced the infected blood tragedy and its aftermath, which included extended and ultimately successful political struggles with the neoliberalising state. The authors reveal a complex interplay of cultural values and present a close-up view of the effects of health system reforms on lives and communities. While the book focuses on the local biology of haemophilia in Aotearoa New Zealand, the analysis allows for comparison with haemophilia elsewhere and with other chronic and genetic conditions.
Table of Contents
- Chapter 1 A bleeding nuisance in Aotearoa New Zealand
- Chapter 2 'Pretty normal really'
- Chapter 3 Blood and sacrifice: sex, gender, and haemophilia
- Chapter 4 New networks and technologies of care: different haemophilias
- Chapter 5 The shadow on our lives: hepatitis C in the haemophilia community
- Chapter 6 Joint action: asserting rights, inclusion, and equity through voluntary association
- Chapter 7 Conclusions
by "Nielsen BookData"
