End of life and people with intellectual and developmental disability : contemporary issues, challenges, experiences and practice
著者
書誌事項
End of life and people with intellectual and developmental disability : contemporary issues, challenges, experiences and practice
Palgrave Macmillan, 2022
大学図書館所蔵 全3件
  青森
  岩手
  宮城
  秋田
  山形
  福島
  茨城
  栃木
  群馬
  埼玉
  千葉
  東京
  神奈川
  新潟
  富山
  石川
  福井
  山梨
  長野
  岐阜
  静岡
  愛知
  三重
  滋賀
  京都
  大阪
  兵庫
  奈良
  和歌山
  鳥取
  島根
  岡山
  広島
  山口
  徳島
  香川
  愛媛
  高知
  福岡
  佐賀
  長崎
  熊本
  大分
  宮崎
  鹿児島
  沖縄
  韓国
  中国
  タイ
  イギリス
  ドイツ
  スイス
  フランス
  ベルギー
  オランダ
  スウェーデン
  ノルウェー
  アメリカ
注記
Includes bibliographical references and index
内容説明・目次
内容説明
This book on end of life examines how to include people with intellectual and developmental disability in the inevitability of dying and death. Comprising 17 chapters, it addresses challenging and under-researched topics including suicide, do-not-resuscitate, advance care planning, death doulas and accessible funerals. Topics reflect everyday community, palliative care, hospice and disability services.
The book proposes that the rights of people with disabilities should be supported up to and after their death. Going beyond problem identification, the chapters offer positive, evidence-supported responses that translate research to practice, together with practice examples and resources grounded in lived experience. The book is applicable to readers from the disability field, and mainstream health professionals who assist people with disability in emergency care, palliative care or end-of-life planning
目次
Chapter 1: Current and New Developments in Death, Dying and End-Of-Life Care Policies and Practices.- Chapter 2: Experience of End-of-Life Issues by People with Intellectual Disability.- Chapter 3: Suicide and Autism: A Lifespan Perspective.- Chapter 4: Advance Care Planning with and for People who have Intellectual and Developmental Disabilities.- Chapter 5: Decision-Making at the End of Life: Challenges and Opportunities for People with Intellectual and Multiple Disabilities in Residential Homes in Germany.- Chapter 6: How People with Intellectual Disability are Dying and Implications for Quality Care.- Chapter 7: Living and Dying Well with Dementia.- Chapter 8: Building shared end-of-life supports and cross-training for hospice/palliative and intellectual disability services providers.- Chapter 9: Supporting People with Intellectual Disability at End of Life: Moral Distress among Staff Caregivers During COVID-19.- Chapter 10: Accessible Funerals and People with Intellectual Disability.- Chapter 11: End-of-Life Doulas and People Living with Intellectual and Developmental Disability.- Chapter 12: Palliative and End-of-Life Care for Children with Intellectual Disabilities.- Chapter 13: End-of-life Issues and Support Needs of People with Profound Intellectual and Multiple Disability.- Chapter 14: The Process of Dying.- Chapter 15: Use of Do-Not-Resuscitate Orders.- Chapter 16: Positioning the Issues: An Agenda for Future End-of-life Research, Policy and Practice.- Chapter 17 End-of Life Resources.
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