Guide for advanced nursing care of the adult with congenital heart disease

著者

• Flocco, Serena Francesca
• Habibi, Hajar
• Dellafiore, Federica
• Sillman, Christina

書誌事項

Guide for advanced nursing care of the adult with congenital heart disease

Serena Francesca Flocco ... [et al.], editors

Springer, c2022

• : pbk

注記

Other editors: Hajar Habibi, Federica Dellafiore, Christina Sillman

Includes bibliographical references

内容説明・目次

内容説明

The aim of this book is to provide one central resource for nurses within the adult spectrum of life-long congenital heart disease care who are seeking expert guidance for their practice, regardless of clinical setting. Over the past 50 years, advances in surgical techniques and medical therapies have drastically improved the number of congenital heart disease patients surviving into adulthood, with the result being that there are now more adults then children living with congenital heart disease. In the past three decades, recognition of this new cardiology subspecialty has given way to formalized programs, standards of care, and multidisciplinary expertise. Indeed Nursing care of adult patients with congenital heart disease (ACHD) is a relatively new medical subspecialty with limited knowledge and guidance available and also an important component of the multidisciplinary care team. Nursing care of the ACHD encompasses a holistic approach to the physical, psychological, social, and spiritual wellbeing of these unique individuals across their lifespan. Understanding the intricacies for the various heterogeneous defect types, the transition from pediatric to adult care, the unique educational and self-care needs, life-events such as pregnancy/reproduction, advanced heart failure, and end-of-life care helps prepare the nurse caring for the ACHD patient. Nurses as a first point of care for the ACHD patients play a pivotal role in the education and empowerment of the ACHD patient population and provide an invaluable role in the multidisciplinary team and with this guide nurses can feel confident in the quality of the care they provide. This book aims to introduce nursing focused care to wider audiences, nurses, medical technicians, and physicians who are involved in the management and treatment of ACHD patients. Improving care and the quality of life for adult congenital heart disease patients with a multidisciplinary team-based approach, including nursing care, should be a central goal for all ACHD programs.

目次

Foreward: Erwin Oechslin (Toronto-CA) and Massimo Chessa, IRCCS, Policlinico San Donato, University Hospital San Donato Milanese, Milan, Italy, [e-mail]) Part 1 Epidemiology, anatomy and pathophysiology (Michael A. Gatzoulis, Royal Brompton Hospital,London UK, [e-mail]) 1 Incidence of congenital heart disease and relevance in adulthood 2 Cardiac defects Part 2 Transition from pediatric to adult care 3 Transitional care for young people (Hajar Habibi, Royal Brompton and Harefield NHS Foundation Trust-UK London, [e-mail]) 4 Advancing high value transitional care: the central role of nursing and its leadership (Christy Sillman, Sutter Heart and Vascular Institute, Sacramento, CA, [e-mail], and Serena Francesca Flocco, IRCCS Policlinico San Donato University Hospital, San Donato Milanese, Milan, Italy, [e-mail]) 5 Building a transition program (Serena Francesca Flocco, IRCCS Policlinico, San Donato University Hospital, San Donato Milanese, Milan, Italy, [e-mail] and Christy Sillman, Sutter Heart and Vascular Institute, Sacramento, CA, [e-mail]) Part 3 Advanced practice nursing 6 The nursing care in the outpatient setting (Alexander Corless, UK London- [e-mail]) 7 The nursing care in the hospital ward (Alexander Corless, UK London- [e-mail]) 8 The nursing care in the perioperative period (Alexander Corless, UK London- [e-mail]) 9 The nursing care in the Cath Lab (to be defined Christy) 10 The nursing care in critical setting (to be defined Christy) Part 4 Advanced heart failure in ACHD 11 HF in ACHD (author to be defined) 12 MCS Strategies (Mauro Cotza, IRCCS Policlinico, San Donato University Hospital, San Donato Milanese, Milan, Italy, [e-mail]) 13 Heart transplantation (Mauro Lo Rito, IRCCS Policlinico, San Donato University Hospital, San Donato Milanese, Milan, Italy, [e-mail] ) 14 Nursing care of Hospitalized ACHD with end-stage HF (author to be defined) Part 5 Nursing care of pregnancy 15 Contraception, family planning and pregnancy (Sara Corzine, Sutter Heart and Vascular Institute, Sacramento, CA [e-mail] and Mary Cannobio, UCLA- [e-mail]) Part 6 Physical activity and sport (Hajar Habibi, Royal Brompton and Harefield NHS Foundation Trust-UK London, [e-mail]) 17 Promotion of daily physical activity and decreasing sedentary behavior Part 7 Patient Self-care and Nursing role for patients' education 18 Self-Care in Adults with Congenital Heart Defects (Federica Dellafiore, IRCCS Policlinico San Donato University Hospital San Donato Milanese, Milan, Italy, [e-mail]) 19 Patient education to self-management (Arianna Magong, Head of Health Professions Research and Development Unit IRCCS Policlinico San Donato University Hospital San Donato Milanese, Milan, Italy, [e-mail] - tbd Nurse team Sillman Christy) 20 Education to pharmacological therapy - Education to lifestyles habits - Infective Endocarditis 21 The health engagement of adult congenital heart disease patients (Rosario Caruso- Head of Health Professions Research and Development Unit IRCCS Policlinico San Donato University Hospital San Donato Milanese, Milan, Italy, rosario.carusogrupposandonato.it) Part 8 End-of-life care: nursing care in the final stage of life (Caroline Scribner, Stanford, USA [e-mail] and Kristina Fontecha, Stanford, USA, [e-mail]) 22 Advanced directives 23 Palliative care 24 Hospice Part 9 COVID 19 and Congenital Heart Disease 25 Resilience and response of ACHD during the Covid-19 Pandemic 26 Nursing role during the Covid-19 Pandemic (Margarita Brida's and Nurse team - Zagabria -Croatia)

「Nielsen BookData」 より

詳細情報

• NII書誌ID(NCID): BC17843261
• ISBN:
  • 9783031075971
• 出版国コード: sz
• タイトル言語コード: eng
• 本文言語コード: eng
• 出版地: Cham
• ページ数/冊数: ix, 337 p.
• 大きさ: 24 cm
• 分類:
  • DC23 : 616.120231
• 件名:
  • LCSH : Congenital heart disease -- Nursing