Living well with a serious illness : a guide to palliative care for mind, body, and spirit

書誌事項

Living well with a serious illness : a guide to palliative care for mind, body, and spirit

Robin Bennett Kanarek

(A Johns Hopkins Press health book)

Johns Hopkins University Press, 2023

  • : pbk

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注記

Includes bibliographical references (p. 177-187) and index.

内容説明・目次

内容説明

A practical guide for understanding how palliative care can improve quality of life for patients and their caregivers. Robin Bennett Kanarek was a registered nurse working with patients suffering from chronic medical conditions when her ten-year-old son was diagnosed with leukemia. As her son endured grueling treatments, Robin realized how often medical professionals overlook critical psychological, emotional, and spiritual support for people with life-threatening illnesses. Living Well with a Serious Illness is the culmination of decades of Robin's work to advance the field of palliative care. Although palliative care is often associated with hospice and end-of-life planning, Kanarek argues for a more expanded definition that incorporates palliative care earlier in patients' journeys. Living Well with a Serious Illness helps patients and their caregivers understand * what palliative care entails * how to access the support they need when going through a serious illness * what questions to ask medical professionals * how to navigate advanced care planning * definitions of common terminology used with end-of-life planning * the importance of spiritual care, coping strategies, and emotional support * how to become an advocate for palliative care This book illuminates the importance of seeing patients as individuals who can benefit from care for their body, mind, and spirit-the core tenet of palliative care.

目次

Foreword by Sunita Puri, MD Introduction: David's Story 1. What is Palliative Care? 2. Barriers to Palliative Care: Taking Care of the Person Versus Fighting the Disease 3. How We Want to Die: Palliative Care's Benefits for Patients and Their Loved Ones 4. How to Get the Care You Want: Knowing What to Ask For, What to Expect, and What to Demand 5. How to Cope When Illness Changes Everything: Quality-of-Life Care Includes the Family 6. Putting it All Together: Creating an Action Plan for When the End is Near 7. Spirituality and Well-Being: Care of the Spirit Matters Too 8. Grief: Tapping into Restorative Sources After Goodbye 9. Making Palliative Care Mainstream: What Legislators, Philanthropists, Educators, and You Can Do Epilogue: David's Legacy-The Kanarek Family Foundation Resources Acknowledgments About the Author Index

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