Research handbook on disability policy

著者

• Robinson, Sally
• Fisher, Karen R.

書誌事項

Research handbook on disability policy

edited by Sally Robinson, Karen R. Fisher

（Elgar handbooks in social policy and welfare）

Edward Elgar, c2023

• : cased

注記

Includes bibliographical references and index

内容説明・目次

内容説明

Examining how policy affects the human rights of people with disabilities, this topical Handbook presents diverse empirical experiences of disability policy and identifies the changes that are necessary to achieve social justice. Expansive in scope, the Handbook illustrates how language, law and concepts about human rights impact the way that disability policy is framed and implemented. Chapters use the lenses of human rights, welfare, health and economic inclusion to address contemporary policy questions such as globalization and technology. Grounded in lived experiences, the Handbook interweaves personal narratives from people with disabilities which provide important insights into how policy impacts opportunity and point to future possibilities for the influence of human rights on policy change. As narrative author Karla Garcia Luiz reflects, 'We often share situations that make us feel lonely, exhausted, insecure, questioning ourselves.... When we share, we realize that these feelings are collective and, [in]naming them we re-signify them and, thus, we strengthen ourselves for political action'. Informed by international, comparative experiences, this Handbook will be an engaging and perceptive resource for students and scholars of sociology and social policy, health and welfare studies and disability policy. With diverse examples from across the Global North and South, it will also appeal to people working in social policy who are looking to develop and reform policies to be more inclusive, accessible and progressive towards people with disabilities.

目次

Contents: Introduction to disability policy through a human rights lens 1 Karen R. Fisher and Sally Robinson PART I HUMAN RIGHTS Sophie Mitra and Sally Robinson 1 Narrative 1: Mia's piece - Candice, Defying Gravity and I 15 Mia Boonen 2 Knowledge production and human rights enhancement: the role and potentialities of emancipatory disability research 17 Mario Biggeri, Federico Ciani, Giampiero Griffo and Sunil Deepak 3 A journey together - co-creation and experiential knowledge of people with intellectual disabilities in social policy 33 Maria Gomez-Carrillo de Castro 4 Accessibility policies in Brazil: negotiating collective access through the principles of Disability Justice for a Brazilian Center for Disability Studies 49 Marivete Gesser and Anahi Guedes de Mello 5 Narrative 2: evil: disabled villains in media 65 Em Dewhurst 6 Developing a participatory indicators-based framework for monitoring disability rights 67 Paula Campos Pinto and Maria Engracia Cardim 7 Disabled person-led monitoring of the UNCRPD in Aotearoa New Zealand: maximising the potential of civil society in the implementation of Article 33.3 85 Robbie Francis Watene, Brigit Mirfin-Veitch and Umi Asaka 8 Narrative 3: if my childhood can have CRPD's company 100 Honglu Zhu 9 The right of people with disabilities to participate in cultural life: is Cinderella going to the ball? 102 Delia Ferri and Ann Leahy 10 When the state does not care: Disability rights in a context of multi-layered crises, instability and disablism 118 Grace Khawam and Supriya Akerkar 11 Decentralization, empowerment and grassroots engagement: advocacy organizations navigating the implementation of codified disability rights in Malawi 135 Sarah I. Huque 12 From enabling access to enabling rights: Singapore's practical approach to disability policy 151 Daryl W.J. Yang, Kuansong Victor Zhuang, Gerard Goggin and Meng Ee Wong 13 An accessible public transit system as a right for people with disabilities in Taiwan 166 Kuo-yu (Lisa) Wang and Pey-chun Pan 14 Narrative 4: the effect of disability policy on lives 183 Chien-Ju Chou 15 The EU framework of people with disabilities' rights - an intertemporal equilibrium between regulatory and policy paradigms 186 Gabriel Amitsis and Fotini Marini 16 The influence of disability models in Indonesian past and present: disability rights law-making and policy-making 202 Abi Marutama, Antoni Tsaputra and Lengga Pradipta 17 The Accessible Canada Act: a political expression of disability rights as human rights 217 Michael J. Prince 18 Narrative 5: locked-in, locked-down: lived experience of a non-speaker 233 Tim Chan 19 From international standard to national practice: the role of national disability institutions in making the Convention on the Rights of Persons with Disabilities a reality in South and Central America 234 Renata Anahi Bregaglio Lazarte, Paula Lucia Camino Morgado and Renato Antonio Constantino Caycho 20 Narrative 6: affection and emancipation: the friendship of four disabled women 251 Karla Garcia Luiz, Laureane Marilia de Lima Costa, Mariana Lucia Agnese Costa e Rosa and Thais Becker Henriques Silveira 21 Decolonizing disability rights policies through indigenous theorization: the case of Zimbabwe 256 Martin Musengi PART II WELFARE Karen R. Fisher and Olivia Geehan 22 Narrative 7: Disabled Howl - AS1428.1 2021 and all that jazz 272 Peter Raisbeck 23 From care and welfare to independent living? Interpreting and assessing the human right to live independently and be included in the community 274 Yvette Maker 24 Sexuality and relationships: informing rights-based policy and practice through research with and by people with intellectual disability in Australia and Aotearoa New Zealand 289 Patsie Frawley and Brigit Mirfin-Veitch 25 Narrative 8: a quiet genocide: the power of segregation 303 Cindy Liu 26 Engaged advocacy: a framework for inclusion of people from refugee and asylum-seeking backgrounds in disability policy 305 Maree Higgins, Mahmoud Murad, Kim Robinson, Angela Dew, Katherine Boydell, Fiona McKay, Joanne Watson, Mariano Coello, Louisa Smith, Kelley Johnson and Ruth Wells 27 Narrative 9: my work advocating for the Syrian community 322 Mahmoud Murad, assisted by Miream Salameh and Maree Higgins, translated by Miream Salameh 28 Australian National Disability Insurance Scheme and disability identity: how welfare policy impacts narratives of disability 330 Tessa-May Zirnsak 29 Tracing the welfare-rights connection in American disability policymaking 346 David Pettinicchio 30 Questioning the dominant welfare discourse on personalization and autonomy embodied in personal budget policy 361 Toon Benoot and Rudi Roose 31 Negotiating rights in education: an examination of U.S. education disability policy 374 Catherine Kramarczuk Voulgarides 32 Narrative 10: my education story 387 Alexander Elliott 33 Preventing catastrophe: the welfare state and disaster risk for people with disabilities 389 Zachary A. Morris 34 Strategic human rights-based policy reforms for making Australian universities equally accessible to students, staff, and faculty who are Indigenous people with disability 402 Sheelagh Daniels-Mayes, Paul Harpur and Michael Ashley Stein 35 Narrative 11: the "lucky" one 418 Ayah Wehbe 36 Exploring equality and non-discrimination of disabled students in policy and practice in public universities in Uganda 421 Paul Emong and Anica Zeyen 37 Participation in personalization of minority cultural groups: lived experience and diversity in the UK 436 Martin Partridge, Mahuya Kanjilal and Elaine Arnull 38 Materializing change: exploring human rights-based approaches to improve built environment accessibility at the neighbourhood scale 451 Mary Ann Jackson, Erin Wilson and Flavia Marcello 39 Narrative 12: the draining expectations placed upon marginalised groups 468 Mac Zamani 40 Alternative community living practices in Taiwan: rethinking de-institutionalization and the human rights model 469 Heng-hao Chang and Yi-chun Chou 41 Mainstreaming disability in Indonesian development: rethinking disability citizenship to move beyond a welfare focus 484 Antoni Tsaputra and Eban Pollard 42 Housing deficit for people with disabilities in a radically neoliberal country: Chile's case 500 Francisca Valdebenito-Acosta, Julio Hasbun-Mancilla and Joao Acharan 43 Inclusion of students with visual impairment in Indian higher education: a critical inquiry from a human rights perspective 516 Aneesh Peter and Catherine Elisa John PART III HEALTH Sally Robinson 44 Narrative 13: voice, choice and a better outcome 535 Raelene West 45 Making disability known: medicalisation of disability and the development of the International Classification of Functioning (ICF) 538 Jennifer Smith-Merry 46 Disabilities, evidence-making, and quality of life: the three core human rights principles framework 550 Luciano Bottini Filho 47 Establishing a human rights-based approach in healthcare: a UK example moving beyond policy and into private spaces 564 Eleanor Brown and Jo Ferrie 48 Narrative 14: technology in the lives of people with disabilities 580 Brooke Ellison 49 Disability and human rights: the right to benefit from scientific progress 582 Anne M. Bryden, Jennifer French and Brian Gran 50 Chasing a runaway train: disability policy grapples with accelerated prenatal genetic technologies 599 Kara B. Ayers and Monica C. Schneider 51 Care robots as enabling assistive technology: implications for quality of life and disability policy 614 Naonori Kodate, Hasheem Mannan, Sarah Donnelly, Yurie Maeda, and Diarmuid O'Shea 52 Narrative 15: disability rights and robotics: being there without being there 631 Sophie Savage and Tillie Curran 53 'It's about quality of life rather than length of life': using and refusing policy discourse in the lives of children labelled with life-limiting and/ or life-threatening conditions 635 Katherine Runswick-Cole, Dan Goodley, Kirsty Liddiard and Sally Whitney 54 Inclusive sexuality education: achieving sexual justice, sexual pleasure and sexual agency for women with disability 652 Denise Beckwith and Nicole Laurance 55 Narrative 16: in her lifetime 666 Lee Tsourvakas 56 Pain management for palliative care patients with disabilities: revisiting morphine prescription policies in developing contexts 668 Julieth Musengi and Martin Musengi PART IV ECONOMIC INCLUSION Karen R. Fisher and Bella Bauer 57 Narrative 17: supported or stuck? Disability employment policy for young people 683 Sionainn Jans 58 Economics of inclusion 685 Daniel Mont 59 Heightism, hierarchies and human rights: how a normalcy of disability infringes on the rights of people with dwarfism 690 Erin Pritchard 60 Post-school transition process in a pandemic: how can young people with disability be better supported? 705 Helen Dickinson, Catherine Smith, Amy Marks and Jess Mitchell 61 The right to work "on an equal basis with others": examining disability employment policies in Australia through the lens of a health and economic crisis 719 Sue Olney and Alexandra Devine 62 Narrative 18: sanist wonderland 737 Damian Mellifont 63 Does the CRPD matter? A comparison of sheltered workshop policies in Japan, Taiwan, and South Korea 739 Yi-Chun Chou, Jun Nakagawa, and Eun-Ju Yoo 64 Disability as an enabler of career success and inclusion 754 Daniel Samosh, Mukta Kulkarni, Alecia Santuzzi and Brent Lyons 65 Narrative 19: I want a job 770 Sadiel Albakri 66 Social entrepreneurship between earning a living and emancipation, impacts of microfinance for people with disabilities in Kenya 771 Yvonne Wechuli, Sellah Lusweti, Halimu Shauri and Elisabeth Wacker 67 Advancing income security policy using universal design: the case of the Ontario Disability Support Program (ODSP) in Ontario, Canada 787 Tracy Smith-Carrier 68 Narrative 20: living with a disability: what difference would a guaranteed livable income make? 803 Joe Foster 69 A human rights-based approach (HRBA) to assistive technology provision in global policy 805 Catherine Holloway, Giulia Barbareschi, Oriol Valles Codina, Nora Colton, Arne Henning Eide, Zuleima Dafne Morgado-Ramirez, Jamie Danemayer, Rainer Kattel and Victoria Austin 70 Conclusion on disability policy 821 Sally Robinson and Karen R. Fisher Index 828

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詳細情報

• NII書誌ID(NCID): BD05206483
• ISBN:
  • 9781800373648
• LCCN: 2023935286
• 出版国コード: uk
• タイトル言語コード: eng
• 本文言語コード: engara
• 出版地: Cheltenham
• ページ数/冊数: xxxv, 851 p.
• 大きさ: 26 cm
• 分類:
  • LCC : HV1568
• 件名:
  • LCSH : Disabilities -- Government policy
  • LCSH : People with disabilities -- Government policy
• 親書誌ID:
  • BC10226234