Genetic counseling : psychological dimensions

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Bibliographic Information

Genetic counseling : psychological dimensions

edited by Seymour Kessler ; with a foreword by Charles J. Epstein

Academic Press, c1979

Available at  / 7 libraries

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Includes bibliographies and index

Description and Table of Contents

Description

Genetic Counseling: Psychological Dimensions deals with the psychosocial aspects of genetic counseling, specifically the various issues and processes involved. This book is based on two premises: first, genetic counseling deals with human behavior and psychological functioning; and second, a strong kinship exists between genetic counseling and other areas of personal counseling. The book is organized into two major sections. The initial chapters focus on principles of genetic counseling, with an attempt to integrate these with specific counseling practices. The second section consists of eight chapters dealing with representative genetic disorders. This book, therefore, is of importance to all who deal with genetic problems and engage in genetic counseling, regardless of their background or specialty.

Table of Contents

List of Contributors Preface Foreword 1 Introduction 2 The Psychological Foundations of Genetic Counseling 3 The Processes of Communication,Decision Making and Coping in Genetic Counseling Human Communication Effective Communication and Effective Counseling Decision Making Coping Processes Discussion Conclusions References 4 The Counselor-Counselee Relationship Models of Counselor-Counselee Relationships Genetic Counseling and Behavior Control References 5 The Genetic Counseling Session The Structure of the Genetic Counseling Session The Intake Phase The Initial Contact Phase The Middle or Encounter Phase Summary Phase Epilogue References 6 Amniocentesis Counseling 7 Genetic Counseling for Parents of a Baby with Down's Syndrome Structure for Providing Genetic Counseling First Clinic Visit Second Clinic Visit The Counseling Process Understanding the Counselee's Pain Genetic Information Options for Dealing with the Recurrence Risk Developmental Issues Evaluating the Outcome Good Case Management Role of the Counselor Counselor Characteristics Appendix References 8 Psychological Issues in Genetic Counseling of Phenylketonuria The Genetics of PKU Dietary Treatment Newborn Screening Programs Maternal PKU Psychological Aspects The Phenylketonuric Family Summary-Issues in Genetic Counseling Case Illustrations References 9 Psychological Issues in the Genetic Counseling of Cystic Fibrosis Clinical Aspects Emotional Issues Social Considerations Therapeutic Issues References 10 Applied Behavioral Genetics: Counseling and Psychotherapy in Sex-Chromsomal Disorders Turner's Syndrome Klinefelter's Syndrome 47,XYY Syndrome Summary References 11 Psychological Issues in Sickle Cell Counseling Self-Image and Sickle Cell Misconceptions about Sickle Cell Apprehensions about Restrictions on Social Opportunity Iatrogenic Complications of Testing and Counseling Psychological Effects of Sickle Cell Related to Stage of Life Content of Counseling Determinants of Decision Making by Clients References 12 Genetic "Russian Roulette": The Experience of Being "At Risk" for Huntington's Disease Reactions to HD Symptomatology Genetic Disease and Family Dynamics "Waiting for Godot" Subjective Prediction: Second Guessing the Unknown through Magic Predictive Tests Family Planning and Prediction Learning to Live in Limbo Psychotherapeutic Suggestions 13 Genetic Counseling and Cancer Cancer as a Unique Genetic Counseling Problem A Colon-Cancer-Prone Family Family Management and Education The Physician and Genetic Counseling Dissemination of Genetic Risk Information Divergent Responses to Risk Information Heritable Cancer Syndromes Amenable to Genetic Counseling Physical Stigmata in Hereditary Precancerous Disorders Gardner's Syndrome Multiple Nevoid Basal Cell Carcinoma Syndrome Testicular Feminization Syndrome National Familial Cancer Registry System Summary and Conclusions References Subject Index

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