Coping with crisis and handicap
Author(s)
Bibliographic Information
Coping with crisis and handicap
Plenum Press, c1981
Available at 5 libraries
  Aomori
  Iwate
  Miyagi
  Akita
  Yamagata
  Fukushima
  Ibaraki
  Tochigi
  Gunma
  Saitama
  Chiba
  Tokyo
  Kanagawa
  Niigata
  Toyama
  Ishikawa
  Fukui
  Yamanashi
  Nagano
  Gifu
  Shizuoka
  Aichi
  Mie
  Shiga
  Kyoto
  Osaka
  Hyogo
  Nara
  Wakayama
  Tottori
  Shimane
  Okayama
  Hiroshima
  Yamaguchi
  Tokushima
  Kagawa
  Ehime
  Kochi
  Fukuoka
  Saga
  Nagasaki
  Kumamoto
  Oita
  Miyazaki
  Kagoshima
  Okinawa
  Korea
  China
  Thailand
  United Kingdom
  Germany
  Switzerland
  France
  Belgium
  Netherlands
  Sweden
  Norway
  United States of America
Note
"Proceedings of the National Symposium on Coping with Crisis and Handicap, co-sponsored by the Eunice Kennedy Shriver Center ... [and others] and held September 10-11, 1979, at the Copley Plaza Hotel, Boston, Massachusetts"--T.p. verso
Includes bibliographies and index
Description and Table of Contents
Description
For over 20 years I have accepted the challenge and had the privilege of caring for sick children, agonizing with their parents during periods of serious illness, which were sometimes fatal. Because of my particular interest in and concern about birth defects and genetic disease, many of these children had severe disabling handicaps, which were often genetic and included mental retardation. Hence care of these children and their families was often complicated by the presence of serious or profound genetic defects. The initial realization of the nature of the disorder invariably led to emotional . difficulties and inevitably later spawned chronic distress. For some children inexorable deterioration led to untimely deaths, while the parents agonized over their handi- capped, chronically ill, or defective-but nevertheless loved---
Table of Contents
1 * The Child Dying in the Hospital.- Discussion.- 2 * Care of the Dying Child at Home.- Discussion.- 3 * The Bereaved Parent.- Discussion.- 4 * Where Was God? The Legitimacy of Religious Anger.- Discussion.- 5 * The Clergyman's Role in Grief Counseling.- 6 * Care in Chronic Fatal Genetic Disease.- Discussion (papers of Grollman and Milunsky).- 7 * Explaining Death to Children.- 8 * Coping with Suicide in the Family.- Discussion.- 9 * Treating the Person Confronting Death.- 10 * Ethics and the Care of the Child with Terminal Illness.- Discussion.- 11 * Kids Are People Too, Sometimes: Parents vs. Children.- Discussion.- 12 * Coping with Handicap: Searching for the Boundaries.- Discussion.- 13 * Helping Parents Cope with a Profoundly Mentally Retarded Child.- 14 * The Involvement of Siblings of Children with Handicaps.- Discussion (papers of Challela and Crocker).- 15 * Reaching Autistic Children: Strategies for Parents and Helping Professionals.- Discussion.- 16 * Coping with Sexuality and Sexual Vulnerability in Developmentally Disabled Individuals.- Discussion.- 17 * A Little Bit of Awkward: Children and Their Disabled Peers.- 18 * Teaching Teachers to Cope.- 19 * Coping Strategies of Children and Their Families.- Discussion (papers of Brightman, O'Connor, and Cahners).- 20 * Law and the Handicapped.- 21 * Societal Perspectives: Where Do We Go from Here?.- Discussion (papers of Beyer and Dybwad).- Selected Recent Bibliography.- Children and Death, Books, Chapters, Television Programs (1973-1978).- Children and Death, Journal Articles (1973-1978).- Handicap and Bioethics, Books (1973-1978).- Handicap and Bioethics, Journal Articles (1973-1978).- Death, Suicide, and Chronic Illness, Journal Articles (1972-1979).- Autism and Burns, Journal Articles (1974-1979).
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