When children die : improving palliative and end-of-life care for children and their families
著者
書誌事項
When children die : improving palliative and end-of-life care for children and their families
National Academy, c2003
大学図書館所蔵 全27件
  青森
  岩手
  宮城
  秋田
  山形
  福島
  茨城
  栃木
  群馬
  埼玉
  千葉
  東京
  神奈川
  新潟
  富山
  石川
  福井
  山梨
  長野
  岐阜
  静岡
  愛知
  三重
  滋賀
  京都
  大阪
  兵庫
  奈良
  和歌山
  鳥取
  島根
  岡山
  広島
  山口
  徳島
  香川
  愛媛
  高知
  福岡
  佐賀
  長崎
  熊本
  大分
  宮崎
  鹿児島
  沖縄
  韓国
  中国
  タイ
  イギリス
  ドイツ
  スイス
  フランス
  ベルギー
  オランダ
  スウェーデン
  ノルウェー
  アメリカ
注記
Includes bibliographical references and index
内容説明・目次
内容説明
The death of a child is a special sorrow. No matter the circumstances, a child's death is a life-altering experience. Except for the child who dies suddenly and without forewarning, physicians, nurses, and other medical personnel usually play a central role in the lives of children who die and their families. At best, these professionals will exemplify "medicine with a heart." At worst, families' encounters with the health care system will leave them with enduring painful memories, anger, and regrets.
When Children Die examines what we know about the needs of these children and their families, the extent to which such needs are?and are not?being met, and what can be done to provide more competent, compassionate, and consistent care. The book offers recommendations for involving child patients in treatment decisions, communicating with parents, strengthening the organization and delivery of services, developing support programs for bereaved families, improving public and private insurance, training health professionals, and more. It argues that taking these steps will improve the care of children who survive as well as those who do not?and will likewise help all families who suffer with their seriously ill or injured child.
Featuring illustrative case histories, the book discusses patterns of childhood death and explores the basic elements of physical, emotional, spiritual, and practical care for children and families experiencing a child's life-threatening illness or injury.
Table of Contents
Front Matter
Summary
1. Introduction
2. Patterns of Childhood Death in America
3. Pathways to a Child
4. Communication, Goal Setting, and Care Planning
5. Care and Caring From Diagnosis Through Death and Bereavement
6. Providing, Organizing, and Improving Care
7. Financing of Palliative and End-of-Life Care for Children and
Their Families
8. Ethical and Legal Issues
9. Educating Health Care Professionals
10. Directions for Research
References
Appendix A: Study Origins and Activities
Appendix B: Prognostication Scores
Appendix C: Assessing Health-Related Quality in End-of-Life Care
for Children and Adolescents
Appendix D: Cultural Dimensions of Care At Life
Appendix E: Bereavement Experiences After the Death of a Child
Appendix F: End-of-Life Care in Emergency Medical Services for
Children
Appendix G: Education in Pediatric Palliative Care
Appendix H: Progress in Pediatric Palliative Care in New York
State--A Demonstration Project
Appendix I: Committee Biographical Statements
Index
目次
- 1 Front Matter
- 2 Summary
- 3 1. Introduction
- 4 2. Patterns of Childhood Death in America
- 5 3. Pathways to a Child
- 6 4. Communication, Goal Setting, and Care Planning
- 7 5. Care and Caring From Diagnosis Through Death and Bereavement
- 8 6. Providing, Organizing, and Improving Care
- 9 7. Financing of Palliative and End-of-Life Care for Children and Their Families
- 10 8. Ethical and Legal Issues
- 11 9. Educating Health Care Professionals
- 12 10. Directions for Research
- 13 References
- 14 Appendix A: Study Origins and Activities
- 15 Appendix B: Prognostication Scores
- 16 Appendix C: Assessing Health-Related Quality in End-of-Life Care for Children and Adolescents
- 17 Appendix D: Cultural Dimensions of Care At Life
- 18 Appendix E: Bereavement Experiences After the Death of a Child
- 19 Appendix F: End-of-Life Care in Emergency Medical Services for Children
- 20 Appendix G: Education in Pediatric Palliative Care
- 21 Appendix H: Progress in Pediatric Palliative Care in New York State--A Demonstration Project
- 22 Appendix I: Committee Biographical Statements
- 23 Index
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