When children die : improving palliative and end-of-life care for children and their families
Author(s)
Bibliographic Information
When children die : improving palliative and end-of-life care for children and their families
National Academy, c2003
Available at 27 libraries
  Aomori
  Iwate
  Miyagi
  Akita
  Yamagata
  Fukushima
  Ibaraki
  Tochigi
  Gunma
  Saitama
  Chiba
  Tokyo
  Kanagawa
  Niigata
  Toyama
  Ishikawa
  Fukui
  Yamanashi
  Nagano
  Gifu
  Shizuoka
  Aichi
  Mie
  Shiga
  Kyoto
  Osaka
  Hyogo
  Nara
  Wakayama
  Tottori
  Shimane
  Okayama
  Hiroshima
  Yamaguchi
  Tokushima
  Kagawa
  Ehime
  Kochi
  Fukuoka
  Saga
  Nagasaki
  Kumamoto
  Oita
  Miyazaki
  Kagoshima
  Okinawa
  Korea
  China
  Thailand
  United Kingdom
  Germany
  Switzerland
  France
  Belgium
  Netherlands
  Sweden
  Norway
  United States of America
Note
Includes bibliographical references and index
Description and Table of Contents
Description
The death of a child is a special sorrow. No matter the circumstances, a child's death is a life-altering experience. Except for the child who dies suddenly and without forewarning, physicians, nurses, and other medical personnel usually play a central role in the lives of children who die and their families. At best, these professionals will exemplify "medicine with a heart." At worst, families' encounters with the health care system will leave them with enduring painful memories, anger, and regrets.
When Children Die examines what we know about the needs of these children and their families, the extent to which such needs are?and are not?being met, and what can be done to provide more competent, compassionate, and consistent care. The book offers recommendations for involving child patients in treatment decisions, communicating with parents, strengthening the organization and delivery of services, developing support programs for bereaved families, improving public and private insurance, training health professionals, and more. It argues that taking these steps will improve the care of children who survive as well as those who do not?and will likewise help all families who suffer with their seriously ill or injured child.
Featuring illustrative case histories, the book discusses patterns of childhood death and explores the basic elements of physical, emotional, spiritual, and practical care for children and families experiencing a child's life-threatening illness or injury.
Table of Contents
Front Matter
Summary
1. Introduction
2. Patterns of Childhood Death in America
3. Pathways to a Child
4. Communication, Goal Setting, and Care Planning
5. Care and Caring From Diagnosis Through Death and Bereavement
6. Providing, Organizing, and Improving Care
7. Financing of Palliative and End-of-Life Care for Children and
Their Families
8. Ethical and Legal Issues
9. Educating Health Care Professionals
10. Directions for Research
References
Appendix A: Study Origins and Activities
Appendix B: Prognostication Scores
Appendix C: Assessing Health-Related Quality in End-of-Life Care
for Children and Adolescents
Appendix D: Cultural Dimensions of Care At Life
Appendix E: Bereavement Experiences After the Death of a Child
Appendix F: End-of-Life Care in Emergency Medical Services for
Children
Appendix G: Education in Pediatric Palliative Care
Appendix H: Progress in Pediatric Palliative Care in New York
State--A Demonstration Project
Appendix I: Committee Biographical Statements
Index
Table of Contents
- 1 Front Matter
- 2 Summary
- 3 1. Introduction
- 4 2. Patterns of Childhood Death in America
- 5 3. Pathways to a Child
- 6 4. Communication, Goal Setting, and Care Planning
- 7 5. Care and Caring From Diagnosis Through Death and Bereavement
- 8 6. Providing, Organizing, and Improving Care
- 9 7. Financing of Palliative and End-of-Life Care for Children and Their Families
- 10 8. Ethical and Legal Issues
- 11 9. Educating Health Care Professionals
- 12 10. Directions for Research
- 13 References
- 14 Appendix A: Study Origins and Activities
- 15 Appendix B: Prognostication Scores
- 16 Appendix C: Assessing Health-Related Quality in End-of-Life Care for Children and Adolescents
- 17 Appendix D: Cultural Dimensions of Care At Life
- 18 Appendix E: Bereavement Experiences After the Death of a Child
- 19 Appendix F: End-of-Life Care in Emergency Medical Services for Children
- 20 Appendix G: Education in Pediatric Palliative Care
- 21 Appendix H: Progress in Pediatric Palliative Care in New York State--A Demonstration Project
- 22 Appendix I: Committee Biographical Statements
- 23 Index
by "Nielsen BookData"